In a message dated 98-09-05 22:06:25 EDT, you write:
<< jamerman >>
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Date: Tue, 8 Sep 1998
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From: TFinch10@AOL.COM
Subject: Re: starting school
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Dear Friends,
I thought some of you on the Listserv with school age children (and
future
school age children) might find this useful. This is a rough copy of
a letter
that we send to Nate's classmate's families each year at the beginning
of
school--and one that people invariably thank us for sending...
"For those of you who have received this letter before, we ask you to
bear
with us as we introduce our son Nate Finch to those who have never
met him or
may have forgotten. Here is how Nate, a 2nd grader in Mrs. Diamant's
class,
describes himself--"I have a brother who is 11 years old named Jeremy.
At our
house, we have fish, turtles, bees and a crayfish. I play the piano,
like to
swim and play hockey. I was born with Apert syndrome. My fingers were
stuck
together but they are not now. It's not a big deal and I don't like
it when
people make it a big deal. You can ask me one or two questions but
not all the
time. It's more fun to play.
Most kids do not make comments directly to Nate but some ask questions,
some
will mention him to you ("There's this kid at school who looks funny.
His
fingers don't bend. Why can't he close his mouth? What's wrong with
him?) and
on the rare occasion, typically in an unsupervised setting, a child
will say
or do something mean. Whatever information you share with your child
will not
be as important as the way that you share it. A warm, accepting, matter-of-
fact tone does the job, helping kids to understand that different does
not
automatically equal Bad, that it's OK to be curious but not mean.
In that spirit...Nate looks a little different because he was born with
a rare
craniofacial condition which affects the bone in his skull, face, hands
and
feet. His head is tall and asymmetrical while his nose and cheeks are
recessed, giving his face a flatter appearance. His mouth is open because
he
can't breathe through his nose. His speech may be difficult to understand
at
first. At birth his fingers and toes were webbed. Nate has had 10 operations
(we're losing count) to separate his fingers and reshape his skull.
As he
grows, he'll have more.
We often answer: "That's just how Nate was born". For the rare instance
when a
child teases or persists in a mean way, it is important to say "Stop".
The enclosed news article is helpful (we enclose an article about how
children
learn sensitivity to other children who have some obvious difference).
Please
feel free to call us with any questions or comments..(we include our
phone
number) Thanks!
From Jeanne in Boston
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Date: Tue, 8 Sep 1998
08:26:45 EDT
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From: Firefli007@AOL.COM
Subject: Re: starting school
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Dear Jean in Boston,
Thanks for the great article re Nate. It helps us "Big Kids"
with Aperts
too!
Hope everyone has had a good Labor Day Weekend.
And Thanks to tyhe Jobes' for the virtual Bouquet.. Flowers on
Tuesday!!
WOW!!
Jenny in Georgia
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Date: Tue, 8 Sep 1998
15:15:27 -0400
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From: Ryan Bradley
<Bradleys_r@COMPUSERVE.COM>
Subject: Hi to all our friends
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Hi Karen:
Our daughter Michelle use to walk right into the wall and other things.
It
was usually when she was turning and taking a step at the same time.
We
took her to an ophthalmologist and she had strabismus (cross-eyed but
you
really could not tell), which we did surgery in May of 1994. I don't
know
id this is Billy's problem but I thought it's worth looking into it.
Regards,
Ryan & Martha
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Date: Tue, 8 Sep 1998
20:52:58 EDT
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From: Yonstein@AOL.COM
Subject: Re: school
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Congratulations to Amy and to you Leanne. I am sure that it was
very
emotional for you. Emily's first birthday was emotional for me.
I can only
imagine what school will be like for her.
Hope all is well.
Janine
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Date: Tue, 8 Sep 1998
21:04:20 EDT
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From: Yonstein@AOL.COM
Subject: Re Book
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The author of Child in Pain is Dr. Leora Kuttner. I kept it on
file for the
future.
Hope this helps.
Janine
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Date: Tue, 8 Sep 1998
21:09:24 EDT
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From: Karen Sweet <Sweetkari6@AOL.COM>
Subject: Re: starting school
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I have the extreme fortunate of working with a student with Apert.
She is
such a delight in my classroom and everywhere she goes int he school
it seems
as if a beam of sunlight follows her. We have been very fortunate
in that the
other children have been very accepting of her and even ask about her
if she
is not in school. I have handled any questions in a very straightforward
manner and the other students have taken what I have said at face value.
I would like any additional information there might be on working with
school
age children. I teach elementary special education.
Karen Sweet
De Zavala Elementary
Houston Tx
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Date: Wed, 9 Sep 1998
17:38:09 EDT
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From: BBarn60368@AOL.COM
Subject: Re: starting school
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Jeanne,
Thanks for the suggestion about the letter you send with Nate to school.
I
have a daughter, Shirley, who started to kindergarten this past August
and I
have a few questions. Did Nate have any trouble in school?
Shirley has
always been a little behind in her language. She went to preK
in the public
school system for two years and they recommended a primary communications
kindergarten where they keep the emphasis on language. They kept
saying she
was behind because something was wrong or not developed. I kept
thinking
Shirley is just head strong and doesn't do anything until she is good
and
ready. Her I.Q. is slightly above average. Anyway, Shirley
just received her
first progress report. The teacher marked her below her grade
level. This
really surprised me as Shirley already knows her ABCs, colors, letter
sounds,
numbers, etc. How could she possibly be below grade level which
would be
beginning kindergarten? Any advice? Anyone else out there
have comments? I
have a conferance with the teacher some time to discuss the progress
report.
I'll let you know what she had to say.
Alice in Central Florida.
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Date: Wed, 9 Sep 1998
19:29:27 -0700
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From: Robin MacDonald
<macdonal@GOLDEN.NET>
Subject: school progress...
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Our daughter is going from a 1/2 day kindergarden to a full day
kindergarden for the reason that the teacher feels that gr. 1 would
be
just too much for her. We cannot disagree as we feel that should she
fall behind in grade one, that would be harmful to her self esteem.
One
more year at the kindergarden level is only going to give her
(hopefully) a head start for 1999 school year.
We have been in constant communication with her teacher all year and
this came as no surprise...although she has made great gains and we
don't feel this is a negative in any way.
After saying all this...every child is different and I think it is
somewhat dangerous to start comparing your child to any other! They
will
develop at their own rate.
I didn't do particularily well in high school...but did do well in
university so I only have to look at myself to realize that we all
are
different!
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Date: Wed, 9 Sep 1998
21:22:33 EDT
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From: GSieb91515@AOL.COM
Subject: Re: Hi to all our friends
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Karen-
Glad to hear Billy is on the mend and so glad to hear your daughter's
mishap
didn't turn out worse. She is very lucky. On the question
of bumps--
Jonathan is constantly bumping his head. I can be standing a few
inches from
him and still not intervene in time. I think a great deal of
it is still the
age and learning to keep his balance (it's worse when he's bandaged
like he is
now for the past 5 weeks). I worry too that he's is going to
do serious
damage but most of the time he hardly whimpers--he does rub the spot
on his
head where he hit though and then shakes it off and goes on with whatever
he
was trying to get into. At 21 months now, he is into everything
and quite the
climber. I'm afraid we have lot's more bumps to get through and
hopefully
none will be serious. We're going to Dallas tomorrow for a follow
up with his
cranial surgeon and am anxious to see what he thinks of Jonathan's
growth
progress.
Hang in there.
Best wishes,
Brenda
Houston
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Date: Thu, 10 Sep 1998
14:04:06 +1200
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From: Howard &
Ann <howrdnan@IHUG.CO.NZ>
Subject: Re: starting school
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Hi Alice, I'm sorry but I can't remember if Shirley has had to deal with much in the way of ops so far. Something we need to remember is that our children have operations that may not appear to have much effect on them because they bounce back so quickly, but don't be fooled. Generally speaking, while their bodies are doing all that healing - which goes on longer than it appears on the surface - they can't also be racing ahead with their learning. And if they are like our Amy they have learned to watch people pretty closely and will only do what they feel they need to for any one particular person.
So, if Shirley appears to be "behind" it may be that she is too busy healing, or catching up from the healing, or she might just be biding her time. You know her better than anyone else. Have faith in her to do what is right for her, and nudge her along where you think necessary. Don't let the "experts" give you the guilts because they are not comparing like with like when they look at their test results and our children. Listen to them, look at your daughter, think about all the extra she has to deal with, and then decide what needs to be done.
I have found with Amy that she will stay behind in something until I am right on the point of charging in and doing something about it, and then she will merrily bounce right on top again. I prefer to think it is me that hasn't enough patience rather than her doing it intentionally! I don't like to think she knows me THAT well!
Good luck with the conference. Can you take along from home the things she does do well for you?
Regards
Ann
NZ
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Date: Wed, 9 Sep 1998
21:29:24 -0500
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From: jamerman@UTI.COM
Subject: Nick's teacher
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Hi,
Going to make this short because my son should have been in bed a half
hour
ago.
I seen Nick's new teacher yesterday. She told me that she read the info
that I sent to school for his folder about apert's and hydro. So that
led
me into telling her about the listserv and Teeter's page.
Well today she pulled up Teeter's page and and clicked on Nick's page
to
show the class. The class thought this was really awesome to see nick
on
the computer. Just thought I would share that. Maybe this can lead
into a
class discussion somedayt to help his classmates learn about how mother
nature works sometimes and that Nick is not the only one and how none
of
these kids asked for this. It just happens.
Judy
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Date: Thu, 10 Sep 1998
12:09:25 EDT
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From: "(Marianne Camous)"
<Camous@AOL.COM>
Subject: Re: Hi to all our friends
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In a message dated 9/6/1998 7:12:28 PM Pacific Daylight Time,
foster@ICONTECH.COM writes:
<< I do have one concern with Billy and that is he has been bumping
his head
an
awful lot since he is waiking around the funiture. Not on purpose
but he
seems to always hit his head first before the rest of his body
and sometimes
he hits it really hard. I know his head is bigger and heavier
but I am
concerned. Has anyone else had this problem? And how will he
ever walk
without falling and hitting his head? His next cranial appt.
is not until
the end of Sept.
>>
Evan just began walking a couple of months ago and went through that
stage
also. I think all toddlers do to some extent but we don't notice it
as much as
we aren't quite so concerned about "surgical heads". I had palpitations
the
first couple of times but had to get over it. He's gotten better but
initially
his balance was so shaky and everything is at that level. Also he loves
to
climb and kept going up things, then having a hard time coming down
and
falling backwards onto his head...right onto the shunt that was so
problematic
before. He's gotten slowly better- hang in there. One thing we had
to do was
to keep reminding him to look down as he would trip over carpet/bare
floor
interfaces and such. now he's kind of got it figured out to look where
he is
going a bit more.
Marianne
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Date: Thu, 10 Sep 1998
12:13:16 EDT
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From: "(Marianne Camous)"
<Camous@AOL.COM>
Subject: Re: Hi to all our friends
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In a message dated 9/6/1998 9:59:03 PM Pacific Daylight Time, jkb@ELPASO.NET
writes:
<< My husband and I have decided it is because with Jacob's hands
being
the tulip kind when he was born, he didn't use them to help stabilize
himself >>
Hmmm- Evan has had his thumbs clear from birth but loves to have his
arms back
in a poition that makes mine hurt to watch. (We call it the "flying
bat-boy
act") His first OT worked long and hard to get him to bring his arms
forward
so he could push up,etc. I figured this was part of the reason that
he didn't
catch himself well when in the process of a "face plant". Anyone else
with
this experience?
Marianne
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Date: Thu, 10 Sep 1998
12:18:45 EDT
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From: "(Marianne Camous)"
<Camous@AOL.COM>
Subject: Re: tissue expansion
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In a message dated 9/7/1998 4:08:12 PM Pacific Daylight Time, JobeCST@AOL.COM
writes:
<< Dr. Genecov said he
looked in to it and that it had not been proven very sucessful
in Apert
kids, >>
When I did an early lit search, I saw a journal article or two with
the same
conclusions. Our hand surgeon takes skin from the lower abdomen with
a
"pfannensteil" or bikini incision (like those routinely used for c-sections)
for the skin. Babies and toddlers have pretty loose skin there and
by the time
he's old enough to care the scar will barely be noiticeable- look just
like a
skin fold.
Marianne
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Date: Thu, 10 Sep 1998
12:24:38 EDT
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From: "(Marianne Camous)"
<Camous@AOL.COM>
Subject: Re: Postop Bowels (was: Head
bumps)
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In a message dated 9/7/1998 6:43:46 PM Pacific Daylight Time,
howrdnan@IHUG.CO.NZ writes:
<< Amy had this after one of her surgeries and it was identified
as an
infecting organism (rotovirus from memory) that she had picked up in
hospital.
The staff automatically denied any possibility that she could have
caught it
in hospital, but as she hadn't been anywhere else its origins were
obvious. >>
Last year in Pittsburgh, there was a huge outbreak of rotavirus. Kids
were
being admitted right and left for dehydration. It was long enough after
Ev's
admission that it was the one thing he probably didn't get in the hospital.
It
was more severe though with vomiting and diarrhea...although he had
an
underlying shunt infection at the time also. If it lasts this long
and is not
making him dehydrated, I'd thing more about giardia. It is also seen
in the
community and can be spread in day care, schools etc. Anyone else in
the
family with problems? Has he lost weight? IS he just having looser
stools or
are they actually watery or with mucous? I agree with looking at dietary
issues like juice, fruit, etc. But stool cultures are easily done-
ask your
pediatrician. It will make you sleep better once an infectious cause
is ruled
out.
Marianne
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Date: Thu, 10 Sep 1998
21:23:48 -0400
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From: Jack and Raquel
<jara1@BELLSOUTH.NET>
Subject: Re: Hi to all our friends
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Marianne,
How old was Evan when he started walking? Nicole just had her
helmet fitted today
and the therapist there said that developmental wise she is like a
6-7 month old
and she is 11 months and one week old she will be one year old on October
3rd. So
she is a long ways from walking. But I guess each child is different.
She also
has no signs of teeth. My only consolation is she won't be bumping
her head any
time soon..
Take care
Raquel Miller
(Marianne Camous) wrote:
> In a message dated 9/6/1998 7:12:28 PM Pacific Daylight Time,
> foster@ICONTECH.COM writes:
>
> << I do have one concern with Billy and that is he has been
bumping his head
> an
> awful lot since he is waiking around the funiture. Not on purpose
but he
> seems to always hit his head first before the rest of his body
and sometimes
> he hits it really hard. I know his head is bigger and heavier
but I am
> concerned. Has anyone else had this problem? And how will he
ever walk
> without falling and hitting his head? His next cranial appt.
is not until
> the end of Sept.
> >>
>
> Evan just began walking a couple of months ago and went through that
stage
> also. I think all toddlers do to some extent but we don't notice
it as much as
> we aren't quite so concerned about "surgical heads". I had palpitations
the
> first couple of times but had to get over it. He's gotten better
but initially
> his balance was so shaky and everything is at that level. Also he
loves to
> climb and kept going up things, then having a hard time coming down
and
> falling backwards onto his head...right onto the shunt that was so
problematic
> before. He's gotten slowly better- hang in there. One thing we had
to do was
> to keep reminding him to look down as he would trip over carpet/bare
floor
> interfaces and such. now he's kind of got it figured out to look
where he is
> going a bit more.
>
> Marianne
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Date: Wed, 9 Sep 1998 20:42:10 -0800
To: Recipient List Suppressed:;
From: John Brosnan <digital@value.net>
Subject: Hiya
Mime-Version: 1.0
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<< YOU HAVE JUST BEEN HUGGED
,` \`-----'..
Y
,\ .~ ` - .
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,'
o |__
Y
_|
(#)
Y
_\ '`~-.
,'
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Y
/ ,'___ :/
\
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' ---...........-' ,'
Y ',
,......
,'
Y
' ,/ `,
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\ \
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Y
', ',-~'` ;
,=3D=3D=3D=3D=3D=3D,
Y
| ;
/__ ,'
Hunny ',
Y
/ /__
) \
POT /
Y
'-.
)----~' \_______/
Y
' - .......-`
PASS IT ON TO 5 PEOPLE WHO YOU CARE ABOUT AND SEND IT BACK To
THE PERSON
WHO SENT IT TO YOU
--------------------
<fontfamily><param>Geneva</param><bigger><bigger><<<<
<bold><color><param>8000,4000,0000</param><bigger> YOU
HAVE JUST BEEN
HUGGED
,` \`-----'..
Y ,\ .~ ` - .
Y ,' o |__
Y _| (#)
Y _\ '`~-. ,'
Y ,\ ,.-~-.' -., .'--~`
Y / / } ` -..,/
Y / ,'___ :/ \
Y /'`-.| `'-..'........ \
Y ; \ )-....|
Y | ' ---...........-' ,'
Y ', ,...... ,'
Y ' ,/ `, ,'
Y \ \ ,.- '
Y ', ',-~'` ; ,=3D=3D=3D=3D=3D=3D,
Y | ; /__ ,' Hunny ',
Y / /__ ) \ POT /
Y '-. )----~' \_______/
Y
' - .......-`
PASS IT ON TO 5 PEOPLE WHO YOU CARE ABOUT AND SEND IT BACK To
THE
PERSON WHO SENT IT TO YOU
</bigger></color></bold></bigger></bigger></fontfamily>
--part1_905408142_boundary--
--part0_905487330_boundary--
=========================================================================
Date: Fri, 11 Sep 1998
00:07:25 EDT
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: JobeCST@AOL.COM
Subject: Fwd: Fw: Fw: How to get Relief
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From: "Christy Louden" <clouden@camalott.com>
To: "Tonya Fender" <FENDER0203@aol.com>,
"Stacey & Chris Jobe"
<JobeCST@aol.com>,
"Sonny & Rita Tamez"
<sonny@camalott.com>,
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"Donna O'Dell" <wodell757@aol.com>,
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Subject: Fw: Fw: How to get Relief
Date: Thu, 10 Sep 1998 07:36:49 -0500
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How to get relief!
--------------------
<html><head></head><BODY bgcolor=3D"#FFFFFF"><p><font
size=3D3 color=3D"#0=
00000"
face=3D"Comic Sans MS"><br>How to get relief!<br><br></p>
</font></body></html>
--------------------
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From: "Chief Jackie R. Mayfield" <chfchief@cyberramp.net>
To: "ALLEN RUSSELL" <russell404@aol.com>,
"Bart Mitchell" <bartmitchell@yahoo.com>,
"Bobby Grashel" <bgrashel@cyberramp.net>,
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,
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=09<JB31219@cyberramp.net>,
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"WILL MAYFIELD" <st_wmayfield@tarleton.edu>,
"Willie Wisko" <Wwiskos@aol.com>
Subject: Fw: How to get Relief
Date: Wed, 9 Sep 1998 19:15:20 -0500
Message-ID: <01bddc50$186357a0$7c6f9ecf@dell>
X-Priority: 3
X-MSMail-Priority: Normal
X-Mailer: Microsoft Outlook Express 4.71.1712.3
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>enjoy
>
>This might cool you off a little!!!!!!!!
>
>
>
Snowballs in August
> Put your mouse at your down arrow of your
> scroll bar & Hold...
>
> VERY COOL!!!!!
>
> SNOWBALL !
> SNOWBALL !
> SNOWBALL
!
> SNOWBALL
!
> SNOWBALL
!
> SNOWBAL L
!
> SNOWBAL L
!
> SNOWBAL
L !
> SNOWBAL
L !
> SNOWBAL
L !
> SNOWBA L
L !
> SNOWBA L
L !
> SNOWBA
L L !
> SNOWBA
L L !
> SNOWBA
L L !
> SNOWB A
L L !
> SNOWB A
L L !
> SNOWB
A L L
!
> SNOWB
A L L
!
> SNOWB
A L L
!
> SNOW B
A L L
!
> SNOW B
A L L
!
> SNOW
B A L
L !
> SNOW
B A L
L !
> SNOW
B A L
L !
> SNO W
B A L
L !
> SNO W
B A L
L !
> SNO W
B A L
L !
> SNO
W B A
L L !
> SNO
W B A
L L !
> SN O
W B A
L L !
> SN O
W B A
L L !
> SN O
W B A
L L !
> SN
O W B
A L L
!
> SN
O W B
A L L
!
> S N
O W B
A L L
!
> S N
O W B
A L L
!
> S N
O W B
A L L
!
> S
N O W
B A L
L !
> S
N O W
B A L
L !
> S
N O W
B A L
L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
>
S N O
W B A
L L !
> S
N O W
B A L
L !
> S
N O W
B A L
L !
> S
N O W
B A L
L !
> S N
O W B
A L L
!
> S N
O W B
A L L
!
> S N
O W B
A L L
!
> SN
O W B
A L L
!
> SN
O W B
A L L
!
> SN O
W B A
L L !
> SN O
W B A
L L !
> SN O
W B A
L L !
> SNO
W B A
L L !
> SNO
W B A
L L !
> SNO W
B A L
L !
> SNO W
B A L
L !
> SNO W
B A L
L !
> SNOW
B A L
L !
> SNOW
B A L
L !
> SNOW
B A L
L !
> SNOW B
A L L
!
> SNOW B
A L L
!
> SNOWB
A L L
!
> SNOWB
A L L
!
> SNOWB
A L L
!
> SNOWB A
L L !
> SNOWB A
L L !
> SNOWBA
L L !
> SNOWBA
L L !
> SNOWBA
L L !
> SNOWBA L
L !
> SNOWBA L
L !
> SNOWBAL
L !
> SNOWBAL
L !
> SNOWBAL
L !
> SNOWBAL L
!
> SNOWBALL
!
> SNOWBALL
!
> SNOWBALL
!
> SNOWBALL !
> SNOWBALL !
> SNOWBALL!
> SNOWBALL!
> SNOWBALL!
> SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
> SNOWBALL!
> SNOWBALL!
> SNOWBALL!
> SNOWBALL!
> SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
> S
NOWBALL!
> S
NOWBALL!
> S
NOWBALL!
> S
NOWBALL!
> S
NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
S NOWBALL!
>
SNOWBALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW
BALL!
>
SNOW
BALL!
> SNOW
BALL!
> SNOW
BALL!
> SNOW
BALL!
> SNOW
BALL!
> SNOW
BALL!
>
SNOW
BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOW BALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
>
SNOWBALL!
> SNOWBALL!
> SNOWBALL!
> SNOWBALL!
> S NOWBALL!
> S NOWBALL!
> S NOWBALL!
> S
NOWBALL!
> S
NOWBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O W BALL!
> S
N O W BALL!
> S
N O W BALL!
> S
N O W
BALL!
> S
N O W
B ALL!
> S
N O W
B ALL!
> S
N O W
B ALL!
> S
N O W
B ALL!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B A L L!
> S
N O W
B A L L!
> S
N O W
B A L L!
> S
N O W
B A L
L!
> S
N O W
B A L
L!!
> S
N O W
B A L
L!!!
> S
N O W
B A L
L!!!!
> S
N O W
B A L
L!!!!!
> S
N O W
B A L
L!!!!!!
> S
N O W
B A L
L!!!!!
> S
N O W
B A L
L!!!!
> S
N O W
B A L
L!!!
> S
N O W
B A L
L!!
> S
N O W
B A L
L!
> S
N O W
B A L
L!
> S
N O W
B A L L!
> S
N O W
B A L L!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B A LL!
> S
N O W
B ALL!
> S
N O W
B ALL!
> S
N O W
B ALL!
> S
N O W
B ALL!
> S
N O W
BALL!
> S
N O W
BALL!
> S
N O W BALL!
> S
N O W BALL!
> S
N O W BALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N O WBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
N OWBALL!
> S
NOWBALL!
> S
NOWBALL!
> S NOWBALL!
> SNOWBALL!
>
>
>
AND NOW...........
>
>
> BAM!!!!!!
>
>
snowballsnowball
>
snowballsnowballsnowball
>
snowballsnowballsnowballsnowball
>
snowballsnowballsnowballsnowballsnowb
>
snowballsnowballsnowballsnowballsnowballsn
>
snowballsnowballsnowballsnowballsnowballsnob
>
snowballsnowballsnowballsnowballsnowballsnowba
>
snowballsnowballsnowballsnowballsnowballsnowball
> snowballsnowballsnowballsnowballsnowballsnowball
> snowballsnowballsnowballsnowballsnowballsnowbal
>
snowballsnowballsnowballsnowballsnowballsnowb
>
snowballsnowballsnowballsnowballsnowballsno
>
snowballsnowballsnowballsnowballsnowball
>
snowballsnowballsnowballsnowballsnow
>
snowballsnowballsnowballsnowball
>
snowballsnowballsnowball
>
GOTCHA!!!!!!!
>
>
>
CONSIDER YOURSELF HIT BY A SNOWBALL!
>
> You are now involved in an e-mail snowball fight.
> Send this to your friends.
> In this snowball fight no one gets frozen fingers and toes.
>
> PASS
IT ON TO ALL YOUR FRIENDS
> SPLAT!!!!
> YOU HAVE BEEN HIT!!
>
>
>
>
>
--part0_905486846_boundary--
=========================================================================
Date: Fri, 11 Sep 1998
00:33:55 EDT
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: JobeCST@AOL.COM
Subject: Fwd: Fw: We enjoyed your info
you sent>: Food for thought!!!
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From: "Christy Louden" <clouden@camalott.com>
To: "Tonya Fender" <FENDER0203@aol.com>,
"Stacey & Chris Jobe"
<JobeCST@aol.com>,
"Sonny & Rita Tamez"
<sonny@camalott.com>,
"Randall Castillo" <rwc-bjc@webtv.net>,
"Marilyn Fuller" <mjf95f@timon.acu.edu>,
"Lindsay Kissick" <daysigirl9@aol.com>,
"Leslie Bechdoldt" <lmb95w@timon.acu.edu>,
"Kerry & Lisa Fender"
<kerry@planetwide.com>,
"Donna O'Dell" <wodell757@aol.com>,
"Alison Henley" <henleya@pioneernrc.com>
Subject: Fw: We enjoyed your info you sent>: Food for thought!!!
Date: Thu, 10 Sep 1998 07:40:57 -0500
X-MSMail-Priority: Normal
X-Priority: 3
X-Mailer: Microsoft Internet Mail 4.70.1155
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>
> ?**Most Important Question**
> During my second month of nursing school, our professor gave
us a
> pop quiz. I was a conscientious student and had breezed through
the
> questions, until I read the last one: 'What is
the first name of the
> woman who
> cleans the school?" Surely this was some kind of joke.
I had seen the
> cleaning
> woman several times. She was tall, dark-haired and in
her 50s, but
> how would I
> know her name?I handed in my paper, leaving the last question
blank.
> Before class ended, one student asked if the last question
would count
> toward our quiz
> grade. Absolutely, said the professor. "In your careers you
will meet
> many people. All are
> significant. They deserve your attention and care, even
if all you
> do is smile and say hello". I've never forgotten that
lesson. I also
> learned her name was Dorothy.
> =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D
> ** Say a Prayer**
> I was taking my usual morning walk when a garbage truck pulled
up
> beside me. I thought the driver was going to ask for directions.
> Instead, he showed me a picture of a cute little five-year-old
boy.
> "This is
> my grandson, Jeremiah," he said. "He's on a life-support
system at a
> Phoenix hospital." Thinking he would next ask for a contribution
to
> his hospital bills, I reached for my wallet. But
he wanted
> something more than money. He said, "I'm asking everybody
I can to say
> a
> prayer for him. Would you say one for him, please?"
I did. And my
> problems didn't seem like much that day.
> =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D
> ** Pickup in the Rain**
> One night, at 11:30 pm, an older African-American woman was
standing
> on the side of a Alabama highway trying to endure a lashing
rain
> storm. Her car had broken down and she desperately needed a
ride.
> Soaking
> wet, she decided to flag down the next car. A young white
man
> stopped to help her-generally unheard of in those conflict-filled
> 1960s. The
> man took her to safety, helped her get assistance and put her
into a
> taxi cab. She seemed to be in a big hurry!
She wrote down his
> address, thanked him and drove away. Seven days went
by and a knock
> came on
> the man's door. To his surprise, a giant combination
console color TV
> and stereo record player
> were delivered to his home. A special note was attached.
The note
> read: Dear Mr. James: Thank
> you so much for assisting me on the highway the other night.
The rain
> drenched not
> only my clothes but my spirits. Then you came along.
Because of
> you, I was able to make it to my dying husband's bedside just
before he
>
> passed away. God bless you for helping me and unselfishly
serving
> others.
> Sincerely, Mrs. Nat King Cole.
> =3D=3D=3D=3D=3D=3D=3D=3D=3D
> ** Giving Blood**
> Giving Blood Many years ago, when I worked as a volunteer at
> Stanford Hospital, I got to know a little girl named
Liza who was
> suffering from a disease and needed a blood transfusion from
her
> five-year-old brother, who had miraculously survived the same
disease
> and had developed the antibodies needed to combat the illness.
The
> doctor explained the situation to her little brother, and asked
the boy
> if
> he would be willing to give his blood to his sister.
I saw him
> hesitate for
> only a moment before taking a deep breath and saying, "Yes,
I'll do
> if it will save Liza." As the transfusion progressed,
he lay in bed
> next to his sister and smiled, as we all did, seeing the color returning
> to
> her cheeks. Then his face grew pale and his smile faded.
He looked up
>
> at the doctor and asked with a trembling voice,
"Will I start to die
> right
> away?" Being young, the boy had misunderstood
the doctor; he
> thought he was going to have to give her all his blood.
> =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D
> ** Two Nickels and Five Pennies**
> In the days when an ice cream sundae cost much less, a 10-year-old
> boy entered a hotel coffee shop and sat at a table. A
waitress put a
> glass of water in front of him. "How much is an ice cream
sundae?"
> "Fifty cents," replied the waitress. The little boy pulled
his hand
> out of his pocket and studied a number of coins in it.
"How much is a
> dish
> of plain ice cream?" he inquired. Some people were now
waiting for a
> table and the waitress was a bit impatient. "Thirty-five
cents," she
> said brusquely. The little boy again counted the coins. "I'll
have the
> plain ice cream," he said. The waitress brought the ice
cream, put
> the bill on the table and walked away. The boy finished the
ice
> cream, paid the cashier and departed. When the waitress
came back, she
>
> began wiping down the table and then swallowed hard at what
she saw.
> There, placed neatly beside
> the empty dish, were two nickels and five pennies - her tip.
>
>
> --------- End forwarded message ----------
>
>
--------------------
<html><head></head><BODY bgcolor=3D"#FFFFFF"><p><font
size=3D3 color=3D"#0=
00000"
face=3D"Comic Sans MS"><br><br>> <br>> ?**Most
Important
Question**<br>> During my second month of nursing
school, our
professor gave us a<br>> pop quiz. I was a conscientious
student =
and
had breezed through the<br>> questions, until
I read the la=
st
one: 'What is the first name of the<br>> woman
who<br>>
cleans the school?" Surely this was some kind of
joke. I =
had
seen the<br>> cleaning<br>> woman several
times. She was
tall, dark-haired and in her 50s, but<br>> how would
I<br>>
know her name?I handed in my paper, leaving the last question
blank.<br>> Before class ended, one student asked
if the la=
st
question would count<br>> toward our quiz<br>>
grade.
Absolutely, said the professor. "In your careers you will
meet<br>>=
;
many people. All are<br>> significant.
They deserve y=
our
attention and care, even if all you<br>> do is
smile and say
hello". I've never forgotten that lesson. I
also<br>>
learned her name was Dorothy.<br>> =3D=3D=3D=3D=3D=3D=3D=3D=
=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D<br>>
** Say a Prayer**<br>> I was taking my usual morning
walk when a
garbage truck pulled up<br>> beside me. I thought
the driver was
going to ask for directions.<br>> Instead, he
showed me a
picture of a cute little five-year-old boy.<br>> "This
is<br>>
my grandson, Jeremiah," he said. "He's
on a life-sup=
port
system at a<br>> Phoenix hospital." Thinking
he would next a=
sk
for a contribution to<br>> his hospital bills,
I reached for my
wallet. But he wanted<br>> something
more than money.
He said, "I'm asking everybody I can to say<br>>
a<br>>
prayer for him. Would you say one for him, please?"
 =
;I
did. And my<br>> problems didn't seem
like much that
day.<br>> =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D<br>>
** Pick=
up in the Rain**<br>>
One night, at 11:30 pm, an older African-American woman was
standing<br>> on the side of a Alabama highway
trying to endure a
lashing rain<br>> storm. Her car had broken down
and she desperat=
ely
needed a ride.<br>> Soaking<br>> wet,
she decided to flag down=
the
next car. A young white man<br>> stopped to help
her-generally
unheard of in those conflict-filled<br>> 1960s. The<br>>
 =
;man
took her to safety, helped her get assistance and put her into a<br>>
taxi cab. She seemed to be in a big hurry! She
wro=
te
down his<br>> address, thanked him and drove away.
Seven da=
ys
went by and a knock<br>> came on<br>> the
man's door. To=
his
surprise, a giant combination console color TV<br>> and stereo
record
player<br>> were delivered to his home. A special
note was
attached. The note<br>> read: Dear Mr.
James: Thank<br>>=
you
so much for assisting me on the highway the other night. The
rain<br>> drenched not<br>> only my clothes
but my spirits.
Then you came along. Because of<br>>
you, I was able =
to
make it to my dying husband's bedside just before he<br>>
<br>>
passed away. God bless you for helping me and unselfishly
serving<br>> others.<br>> Sincerely,
Mrs. Nat King Cole.<br>&g=
t;
=3D=3D=3D=3D=3D=3D=3D=3D=3D<br>> ** Giving Blood**<br>>
=
Giving Blood Many
years ago, when I worked as a volunteer at<br>> Stanford
Hospital=
,
I got to know a little girl named Liza who was<br>>
sufferi=
ng
from a disease and needed a blood transfusion from her<br>>
five-
year-old brother, who had miraculously survived the same disease<br>>
and had developed the antibodies needed to combat the illness.
The<br>> doctor explained the situation
to her little broth=
er,
and asked the boy<br>> if<br>> he would
be willing to give his
blood to his sister. I saw him<br>> hesitate for<br>>
only a moment before taking a deep breath and saying, "Yes,
I'l=
l
do<br>> if it will save Liza."
As the transfusio=
n
progressed, he lay in bed<br>> next to his sister and smiled,
as we all
did, seeing the color returning<br>> to<br>> her
cheeks.
Then his face grew pale and his smile faded. He
looked up<br>&=
gt;
<br>> at the doctor and asked with
a trembling voice,
"Will I start to die<br>> right<br>> away?"
Be=
ing
young, the boy had misunderstood the doctor; he<br>>
thought he was going to have to give her all his blood.<br>>
=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=
=3D=3D<br>> ** Two Nickels and Five
Pennies**<br>> In the days when an ice cream sundae
cost much les=
s, a
10-year-old<br>> boy entered a hotel coffee shop
and sat at a tab=
le.
A waitress put a<br>> glass of water
in front of him.
"How much is an ice cream sundae?"<br>>
"Fif=
ty
cents," replied the waitress. The little boy pulled
his
hand<br>> out of his pocket and studied a number
of coins in it.
"How much is a<br>> dish<br>>
of plain ice cream?&q=
uot;
he inquired. Some people were now waiting for a<br>>
table =
and
the waitress was a bit impatient. "Thirty-five cents,"
she<br>> said brusquely. The little boy again counted
the coins.
"I'll have the<br>> plain ice cream,"
he said. Th=
e
waitress brought the ice cream, put<br>> the bill
on the table an=
d
walked away. The boy finished the ice<br>> cream, paid
the cashie=
r
and departed. When the waitress came back, she<br>>
<br>> bega=
n
wiping down the table and then swallowed hard at what she
saw.<br>&g=
t;
There, placed neatly beside<br>> the empty dish,
were two nickels=
and
five pennies - her tip.<br>> <br>> <br>>
--------- End
forwarded message ----------<br>> <br>> </p>
</font></body></html>
--part0_905488436_boundary--
=========================================================================
Date: Fri, 11 Sep 1998
12:59:13 -0400
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Ryan Bradley
<Bradleys_r@COMPUSERVE.COM>
Subject: Re: Hi to all our friends
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 8bit
Hi Raquel:
Our daughter Michelle did not walk until she was 18 months old, and
her
teeth came in late but we don't remember when.
Take care,
Ryan & Martha
=========================================================================
Date: Fri, 11 Sep 1998
13:31:20 EDT
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: NephiRose@AOL.COM
Subject: Re: Hi to all our friends
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hi y'all and Marianne:
I used to worry myself silly whether Sarah V. would walk or not.
Visions of
carrying a 40 lb kid tired me out already! She started to walk
at 23 months.
She had the ability, it just didn't sink in that she was actually supposed
to
walk until we borrowed a mini-walker (like the ones the old folks use).
We
encouraged her to use it for about a week, then she started taking
off on her
own. We returned the walker and now she is into everything!
As for her
teeth, hers came in late too. She is 25 months and she has 6
teeth. I hope
it stays that way for a while as her mouth will get tooo crowded.
She doesn't
have enough room. Hang in there!
Belinda Vicars
(Utah)
=========================================================================
Date: Fri, 11 Sep 1998
21:53:50 EDT
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Yonstein@AOL.COM
Subject: Re: Falling "Face Plant"
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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I laughed when I read Marianne's description of falling. Although
Emily is
not yet walking, 13 months, she does that same thing from a sitting
position.
She is now just starting to protect herself and put her hands down.
That is
what her PT has been working on more and more so that when she does
start to
walk she will not hurt herself.
Em also keeps her arms back all the time. She is also very resistive
to too
much touch on her hands, like when I try to pull them forward or keep
them
there.
Judy, I think it's great that the class was able to see and read about
Nick
and the other kids. Knowledge is the best way for them to understand
what
Nick has had to go through and then to see how well he has done and
all that
he has accomplished.
Best wishes to all,
Janine
=========================================================================
Date: Fri, 11 Sep 1998
23:11:21 EDT
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Nodrmat26@AOL.COM
Subject: Zoey and Walking
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hello All!
Zoey's Mom here and was just wondering if Zoey holds the record on taking
the
longest to walk and to get teeth. She's 20 months old this month
and hasn't
so much as taken a step on her own. Not one single solitary tooth,
either.
I'm not saying I'm in any way dissapointed in her, just kinda curious
to see
if she holds any records! :o)
Christina
In rainy (finally) San ANtonio
=========================================================================
Date: Sat, 12 Sep 1998
09:08:35 EDT
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Patbrat718@AOL.COM
Subject: teeth cutting and walking
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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Jasmyn started walking at twelve months, she actually did this with
her casts
on her legs. She didn't cut her first tooth until 15 months,
and they have
always been a bear to get in. She had preventive care starting
at three
months, and until she was two and a half (she graduated), they always
scored
her below her age expectations. Today, at ten, and in the fifth
grade, she
struggles, but more importantly, she accomplishes. I wish someone
had told me
this nine years ago.... Your baby is going to make their own place
in this
world, God already has that planned out. Don't worry too
much about
tomorrow, spend your time enjoying the love they bring to you.
Jasmyn has
always known that I love her, I just didn't get to enjoy it as much
as I would
have like to.....and bummer, I can't get that back.
=========================================================================
Date: Sat, 12 Sep 1998
10:21:37 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: "D. Jefferson"
<djeff@MIDWEST.NET>
Subject: Re: Ramblings:
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Dear Friends:
We're coming in on the home stretch. Seth's surgery is Tuesday
so I am
trying to get all my ducks in a row. I had to take Seth out of
school last
Tuesday because he developed an eye infection and we had to race 120
miles
to St. Charles to see his ophthalmologist. The appointment was
at 4:15 and
despite delays due to construction on the MLK bridge and a terrible
wreck
at the St. Charles exit we managed to walk into the doctors office
at 4:17.
We spent the night with Seth's sister in St. Louis because Seth
had an
appointment with a child psychologist at Children's Hospital the next
day.
Seth and I watched the Cardinals game on TV with Delaney and her room
mates. It was great seeing Mark McGuire hit his 62nd home run.
I hope
Seth will remember it, I know I will.
The visit with the child psychologist was very interesting. The
bottom
line was that Seth understood the surgery that he was about to have,
he was
afraid but trusted us to take care of him. She felt that his
understanding
was as good as could be expected from a seven year old. I left
her office
feeling much better about the up coming surgery.
Seth was unable to return to school on Thursday because of an out break
of
a virus that seemed to cause a high fever in several of the students.
I
hope he escaped exposure, however, his best friend, Joel, didn't.
Isn't
this always the case.
Friday I went to Seth's class to explain about the surgery and to answer
any concerns. I don't believe that I can accurately convey the
experience
to you, however, I want to try. The children were wonderful.
They
listened to my explanation intently, they expressed some concerns,
but
mostly wanted me to tell Seth that they cared about him and wanted
him to
come back soon. As I left many children brought up notes that
they had
written, pencils and bits of things from their desk, things that must
have
had some special meaning to each of them, to give to Seth. It
was so
touching. One little girl, named Lena, seemed to feel especially
tender
about Seth's upcoming surgery. In her note, she wrote that she
would teach
Seth how to tie his shoes when he got back. More than one boy
wrot