I'm a "lurker" as well as a travel agent!  Golf is one of my specialties, so I
know Myrtle Beach as well. I would love to pass on any information needed.

Have a wonderful reunion.

robin moreno
=========================================================================
Date:         Tue, 15 Dec 1998 07:44:35 -0600
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         "Horning, Bob D (MN14)" <;Horning_Bob@HTC.HONEYWELL.COM>
Subject:      Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain

Hi everyone

We are beginning to run into something that most of you will get to in a few
years.  For you, this is a warning.  For those who have already been there,
I'm looking for any advice.

Krista (11) is just beginning all the oral/dental work that goes on with
Aperts kids during adolescence.  She just recently had a small oral surgery
to remove some teeth and other things growing in her mouth.  Braces will
start in a year or so....

Although we have pretty decent insurance we are quickly learning that
oral/dental things fall in a crack.  A big expensive one.  Insurance
companies call it a dental issue and don't cover it for that reason.  Dental
insurance says it is medical (which I believe it is) and/or that it falls
outside the scope of the normal teenage braces, etc.  And if they do cover
some of it, they cover some small fraction of what a normal teenager would
pay for regular braces.  That doesn't even scratch the surface of what our
kids will need.  Since we're just starting down this road we have a bunch of
work to do to see if we can convince somebody that this IS medically
necessary before we give up.  If this is a few years away for you, you might
want to check into it now to see what is and isn't covered.

Enough of that.  It was sunny and 55 (F) here in Minnesota yesterday!  Hope
everyone has a merry Christmas.

Bob Horning
=========================================================================
Date:         Tue, 15 Dec 1998 08:11:30 -0800
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Thomas Troudt <;ttroudt@SPRYNET.COM>
Subject:      Re: Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit

something to keep in mind.  It is a law that your insurance co. must cover
the medical expences if our kiddos have any dentistry done in the hospital.
Since our kids are a high risk for any kind of anesthisia, if you have a
dental surgery and do it in the hospital, insurance must pay for the
hospital and anesthesia bills like it was a regular surgery.  But insurance
isn't responsible for the dentist bill itself.  I have a copy of the House
Bill 98-1243 if anyone is interested in a copy, let me know and I will snail
mail a copy to you.  Diana Troudt- Greeley Co.
=========================================================================
Date:         Tue, 15 Dec 1998 10:46:18 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Don Sears <;dsears@SCRS.STATE.SC.US>
Subject:      Re: Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain

Also, check to see - most insurance covers oral surgery if it's
necessary due to an accident or a congenital defect.

> -----Original Message-----
> From: Thomas Troudt [SMTP:ttroudt@SPRYNET.COM]
> Sent: Tuesday, December 15, 1998 11:12 AM
> To:   APERT@LISTSERV.AOL.COM
> Subject:      Re: Oral/dental insurance
>
> something to keep in mind.  It is a law that your insurance co. must
> cover
> the medical expences if our kiddos have any dentistry done in the
> hospital.
> Since our kids are a high risk for any kind of anesthisia, if you have
> a
> dental surgery and do it in the hospital, insurance must pay for the
> hospital and anesthesia bills like it was a regular surgery.  But
> insurance
> isn't responsible for the dentist bill itself.  I have a copy of the
> House
> Bill 98-1243 if anyone is interested in a copy, let me know and I will
> snail
> mail a copy to you.  Diana Troudt- Greeley Co.
=========================================================================
Date:         Tue, 15 Dec 1998 11:55:19 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Colleen Jones <;coljones@PTDPROLOG.NET>
Subject:      good toys
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit

Karen Foster mentioned naming a few good toys.  Jacob (2 Yrs) really liked
the Fisher Price Musical Activity Chair when he was only 9 mos and he still
sometimes uses it.  It really helped him to learn to turn and sit and stuff
like that. For his 2nd Birthday he got the Little Tikes Grow to Pro
basketball net and ball.  This has been wonderful for him because it makes
him lift his arms as high as he can(good for his limited shoulder
movement).  He is already on the 2nd notch and just about ready to go
higher.  He also is learning to throw the ball in instead of just reaching
over the top.  Just thought I would mention these two items that have
really benefited him. Happy Holidays to all.
Colleen Jones
coljones@ptdprolog.net
=========================================================================
Date:         Tue, 15 Dec 1998 16:17:13 -0600
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Judy Amerman <;jamerman@UTI.COM>
Subject:      Re: oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit

I am also traveling that road.  Nick will be getting expansions sometime
soon which prompted us to check with our insurance.

As far as considering oral surgery as medical, we have had Nick's plastic
surgeon write a letter to the insurance company trying to get it across to
them why Nick's oral surgery should be considered medical to no avail.  The
only thing we could get them to cover was the x-rays because the plastic
surgeon will use them later.

As it sits, we will be responsible for everything over $1,000.

Judy
=========================================================================
Date:         Tue, 15 Dec 1998 16:19:53 -0600
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Judy Amerman <;jamerman@UTI.COM>
Subject:      Re: Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit

Diana,

I would love a copy of the bill

Judy Amerman
1035 E. Fairview
Morris, Il  60450 or I have a fax at home.  815-942-1588

Judy
----------
> From: Thomas Troudt <;ttroudt@SPRYNET.COM>
> To: APERT@LISTSERV.AOL.COM
> Subject: Re: Oral/dental insurance
> Date: Tuesday, December 15, 1998 10:11 AM
>
> something to keep in mind.  It is a law that your insurance co. must
cover
> the medical expences if our kiddos have any dentistry done in the
hospital.
> Since our kids are a high risk for any kind of anesthisia, if you have a
> dental surgery and do it in the hospital, insurance must pay for the
> hospital and anesthesia bills like it was a regular surgery.  But
insurance
> isn't responsible for the dentist bill itself.  I have a copy of the
House
> Bill 98-1243 if anyone is interested in a copy, let me know and I will
snail
> mail a copy to you.  Diana Troudt- Greeley Co.
=========================================================================
Date:         Tue, 15 Dec 1998 21:14:43 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         BBarn60368@AOL.COM
Subject:      Re: Oral/dental insurance
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Happy Holidays to everyone!

As far as the insurance co. paying for dental work goes:  Shirley had to go in
the hospital to have dental work done when she was 2.  She had cavities
filled, root canals done, x-rays, fluoride treatment, etc.

My husband's dental insurance covered $933 of the $1075 total bill for the
dentist and my dental insurance picked up the remaining $142 and I didn't even
have to fight them for it.

The anesthesia was $950 which was paid entirely by my husband's medical
insurance.  My husband's medical insurance also paid $2648.86 of the $3116.31
hospital bill, and $95 of the $196.94 radiology bill.  I don't recall the
Hospital asking us for any of the remainder.

I guess this was one time where the insurance companies did what they were
supposed to do without an argument.  It's nice to know there are success
stories, too.

Hope everyone has wonderful holidays!
May God bless,

Alice in Orlando, Florida where we just had our first cool day of the year.
The high was 63 degrees.
=========================================================================
Date:         Tue, 15 Dec 1998 21:17:26 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         ETolson643@AOL.COM
Subject:      Re: oral/dental insurance
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hello to all

We have had the same experience with dental costs...the medical insurance
won't cover it...even after the doctors wrote letters which supported the fact
that the dental problems are medically based.  We owe Children's a fairly
large amount of money for braces and extractions.  Every time I go to the
dental clinic I hope that the bill collector doesn't nab me...he usually seems
to get me and never gets my husband when he goes in!!!  It's become a running
joke....

Beth Tolson
=========================================================================
Date:         Wed, 16 Dec 1998 07:48:15 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         TFinch10@AOL.COM
Subject:      Re: APERT Digest - 14 Dec 1998 to 15 Dec 1998 (#1998-125)
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hi Everyone,
This oral/dental topic is facing us right now. Nate just got a palate widener
and braces. (He's 8). We're just beginning to go down this road. Right now,
we're fighting to get our health plan to cover some of it. So far, no good.
The whole subject makes me want to scream! Diana--I'd love copy of that bill.
Please send--Jeanne McDermott, 10 Field Rd. Lexington, MA 02421. Thanks. And
happy holidays. Jeanne
=========================================================================
Date:         Wed, 16 Dec 1998 06:53:20 -0600
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         "D. Jefferson" <;djeff@MIDWEST.NET>
Subject:      Re: Three gift ideas
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit

Magna Doodle is a great gift.  It is easy to write on, no pressure needed.
 

Code Buster is lots of fun, even for adults.  Seth is getting quite good at
it.  Furby loves to talk to it.

Software from The Learning Company Reader Rabbit and Magic School Bus
(Seth, of course, loves the Dinosaurs).

Dori A. Jefferson
djeff@midwest.net
=========================================================================
Date:         Wed, 16 Dec 1998 17:22:05 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Ryan Bradley <;Bradleys_r@COMPUSERVE.COM>
Subject:      Samantha Guyette
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 8bit

Hello Lisa & Richard:

Congratulations on your new baby girl Samantha.
We are Ryan, Martha & Michelle Bradley. We live in Algonquin, IL.
Michelle is almost 8 (next month), she is doing great.
I can't help you on the drops for the eyes situation, I don't recall using
any on Michelle.
One great thing abouth Samantha being born on Nov 11, she will always have
her birthday off from school. Ryan's birthday is on the 11th also.

We wish you all a Merry Christmas.

Take care,

Martha
=========================================================================
Date:         Wed, 16 Dec 1998 19:09:37 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Edelman Member <;CoH1862@AOL.COM>
Subject:      Re: Oral/dental insurance
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

They do not cover braces.
=========================================================================
Date:         Wed, 16 Dec 1998 19:08:18 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Edelman Member <;CoH1862@AOL.COM>
Subject:      Re: Oral/dental insurance
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

We have already run into the problem. Our daughters, Mallory and Melissa have
to have braces. $7000!!! Mallory's is not covered by insurance either even
though I have dental coverage. It should be obvious to whomever at the
insurance co.,that the pictures the orthodonist sends in is an obvious sign
they need and have to have braces.It is not for cosmetic looks but for
survival to eat. Enough on my soapbox. Any info is appreciated.
  Thanks,
   Diane in cool Tn.
=========================================================================
Date:         Wed, 16 Dec 1998 20:12:35 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         GSieb91515@AOL.COM
Subject:      Re: Three gift ideas
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Dori,

I agree, Magna Doodle is great.  We use it in therapy.  They also make a baby
magna doodle with a larger wand.  How did you luck out and get a Ferbie?  We
haven't had any success here in Texas.

We also had a scary reaction after Jonathan's last cranial surgery.  His sats'
dropped very quickly and his arm had turned red from his wrist to the elbow.
They immediately reversed the morphine he had just been given and all was well
again.  I think he had too much too soon.   Anyway, I know how frightening
that is and we are glad that Seth is doing better.  He has been through so
much lately.  Best wishes for a happy holiday.

Brenda
Houston
=========================================================================
Date:         Wed, 16 Dec 1998 20:46:19 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         GSieb91515@AOL.COM
Subject:      Re: Samantha Guyette
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Welcome Lisa, Richard and Samantha from the Sieberts (George, Brenda, Melissa
and Jonathan (2 years old on Dec. 6 and 6 surgeries down) from Houston, Tx.
We were given drops at birth as well but didn't really need them. Although
Jonathan doesn't shut his eyes completely, we have never had a problem with
them drying.  His eyes continue to tear but not as much these days.  You will
find that the first year is the most exhausting with all the specialist appts.
and research but we are here to help in anyway with questions that you may
have.  Enjoy your precious baby girl every minute.  They grow so fast.  I can
hardly believe we have been part of this wonderful family for two years now.
Jonathan can be seen up until last April on his new web page (thanks very much
to Don).  We will work on getting updated photos in at a later date when Don
has a chance to catch up.  Again welcome!

Brenda Siebert
Houston
=========================================================================
Date:         Fri, 18 Dec 1998 09:34:08 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Colleen Jones <;coljones@PTDPROLOG.NET>
Subject:      positive comment
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit

Hello, thought I would share a neat experience with you all.  We worry so
much about how are kids will be accepted by others and all the teasing they
will endure.  Last evening we went to Julianne's Christmas concert (she is
5). Jacob (2 with Apert's) and his dad were walking the halls and a young
boy (about 7 or 8) came up and said what happen to him.  Jerold told him he
was born that way.  The boy said "He looks different but he is really
cute!"  He then started talking to Jacob too.  There are some good kids out
there!! Some of Julianne's kindergarten kids enjoyed playing with Jacob
too. Hope everyone has a good holiday season.
Colleen Jones and gang
coljones@ptdprolog.net
=========================================================================
Date:         Fri, 18 Dec 1998 19:54:52 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         BBarn60368@AOL.COM
Subject:      (no subject)

Hello and happy holidays to all!  I have wanted to share my story with you, but hesitated since it is a bit lengthy.  I decided Christmas is a good time to share it, though, so here goes:  (Sorry about the length.)

My Gifts

by Alice Tate-Barnett
 
 

The date was June 9th, 1993.  The event was supposed to have been one of the happiest and most joyous occasions of my life: the birth of my little girl.
Instead, my feelings of happiness, ecstasy and joy were replaced with feelings of overwhelming disappointment, disbelief and helplessness.  I didn't birth the little girl I had carried in my mind for the past nine months.  The perfect and beautiful little baby who was to become my treasured sister's namesake. I birthed a little girl with abnormalities.  At her birth, instead of the usual, "Congratulations."  I heard: "Didn't you have amniocentesis"?

My little girl's fingers were all fused together.  My little girl's toes were all fused together.  My little girl's eyes were abnormally far apart and droopy.  My little girl's head was abnormally large.  I was stunned.  I was shocked.  I couldn't cry, at first.  I could only stare into my feelings of disbelief.

The next day a geneticist came to explain our little girl's condition to us.  It was called Apert Syndrome.  In addition to the abnormalities that were obvious, it entailed abnormalities of the skull.  It was fused where the usual soft spots are and therefore, would not give to accommodate the growth of the brain.  Her whole midface was affected.  It meant many surgeries, as many as 10-20 before she reached her teens.  And that was not all.  There could be intellectual problems.  For sure there would be self esteem problems.  Our little girl would require extra special love and emotional support.

My decision to have children had not come easily. I had always felt so inadequate.  How in the world would I be able to provide what children need and deserve?  Was I able to give so unselfishly, all that a child had to have?  Those questions I had asked myself over and over, haunted me now at the birth of my daughter.  The doubts about motherhood that I had, were still with me.  They had not completely diminished with the birth of my son eighteen months previously.  Now, not only was I the mother of two, but I was called to be the mother of a "special needs child."

I truly felt inadequate now, so small, so much less than I knew I would have to be.  There was one thing that I was sure of:  I was sure that this was oh so much bigger than me!  I knew I needed help and I would need this help for the rest of my life.  It was at this time that I turned to God.

The next day Shirley and I were rushed out of the hospital.  Shirley's doctor wanted her to be seen by a neurosurgeon, as soon as possible.  After being seen by this doctor, we took Shirley home.  We brought her into the house and set her car seat, with her in it, on the floor.  Several family members were there and we all stood in a circle looking sadly down at Shirley, everyone with long faces, and noone saying a word.  All I could think was what in the world are we going to do with her?  That was the first question I had that God immediately answered for me.  My answer came through the actions of my eighteen month old son.  It was at that time that he walked over to Shirley and laid his little head so lovingly against hers, and there was my answer: we are going to love her.

God has answered many of my questions since that time.  He has also provided me with the strength to endure eight surgeries with Shirley.  I have been able to hug her, hold her, sing to her and love her so very deeply.  I don't see Apert Syndrome when I look at my little girl now, as I did the day I birthed her.  I see Shirley.  I see God's precious gift that saved my life.  For it was Shirley's birth that germinated the seed of my relationship with God.  Since that germination, my relationship with God has grown slowly and wonderfully and joyously and I am so thankful for the gift of everlasting life that God has offered to me through the gift of my Shirley.

May God bless you all, the way He has blessed me!  Much love,

Alice Tate-Barnett in Orlando, Florida

=========================================================================
Date:         Fri, 18 Dec 1998 20:27:47 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Cristy Williams <;CARLEE0604@AOL.COM>
Subject:      Re: (no subject)
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Alice,

Just wanted to let you know how beautiful your story was.  We live in Florida
also. In Orange Park which is close to Jacksonville. About 2 hours away from
you. You live in Disney Country. My daughter is almost 7 months old. Her name
is "Carlee". Your story was very touching. Tell Shirley Hello for us.

Cristy and Carlee
in Orange Park,  Florida
=========================================================================
Date:         Sat, 19 Dec 1998 07:02:50 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Jenngram@AOL.COM
Subject:      Re: (no subject)
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Alice,

What a wonderful and beautiful way to sum it all up....

Jenn(tampa/St. Pete)
=========================================================================
Date:         Sat, 19 Dec 1998 23:35:10 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Edelman Member <;CoH1862@AOL.COM>
Subject:      Re: (no subject)
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

What a beautiful story to share at this time of year. Have a very Merry
Christmas!!!
=========================================================================
Date:         Sun, 20 Dec 1998 10:16:39 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Richard Thornquist <;rlthorn@EARTHLINK.NET>
Subject:      Re: Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit

  I have a copy of the House
>Bill 98-1243 if anyone is interested in a copy, let me know and I will
snail
>mail a copy to you.  Diana Troudt- Greeley Co.

>

Diana,

I would love a copy of that if you don't mind.  I have already spoken with
my insurance company and they don't believe that it is covered, but that
would be up to the nurses on staff.  We do have one plus, our health
insurance and dental insurance for Andrew is under one company.  The other
thing to consider, is if any of you have state health insurance, they may
pay for it if your eligible.  We have MassHealth as well as Tufts.  It seems
MassHealth has not paid for anything really, but it is good to have in case
of emergency.  My e-mail address is rlthorn@earthlink.net

Thanks so much.

Lynn Thornquist
=========================================================================
Date:         Sun, 20 Dec 1998 10:17:53 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Richard Thornquist <;rlthorn@EARTHLINK.NET>
Subject:      Re: Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit

Sorry Diana, I forgot to actually give you my address.

Lynn Thornquist
6 Maple Street
Hopedale, MA  01747

Thanks again.
=========================================================================
Date:         Sun, 20 Dec 1998 18:37:36 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Edelman Member <;CoH1862@AOL.COM>
Subject:      Re: Oral/dental insurance
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Please e-mail a copy to me. Thanks. CoH1862@aol.com
 Thanks,
 Diane Youngblood in Tn.
=========================================================================
Date:         Sun, 20 Dec 1998 20:59:58 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Cristy Williams <;CARLEE0604@AOL.COM>
Subject:      Re: Oral/dental insurance
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Please Email me a copy of the dental bill

Thank you,
Cristy
Email address: carlee0604@aol.com
=========================================================================
Date:         Sun, 20 Dec 1998 21:08:57 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Cristy Williams <;CARLEE0604@AOL.COM>
Subject:      Fwd: Carlee
Mime-Version: 1.0
Content-type: multipart/mixed; boundary="part0_914206136_boundary"

This is a multi-part message in MIME format.

--part0_914206136_boundary
Content-ID: <;0_914206136@inet_out.mail.aol.com.1>
Content-type: text/plain; charset=US-ASCII
 
 

--part0_914206136_boundary
Content-ID: <;0_914206136@inet_out.mail.aol.com.2>
Content-type: message/rfc822
Content-transfer-encoding: 7bit
Content-disposition: inline

From: CARLEE0604@aol.com
Return-path: <;CARLEE0604@aol.com>
To: apert@listserv
Subject: Carlee
Date: Fri, 18 Dec 1998 20:35:58 EST
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hello Everyone,

I know everyone is very busy this time of year. I justed wanted to let
everyone know that Carlee's surgery was moved up from Jan. 7th to Dec. 31st.
She has been having a problem with her fingernails ingrowing. I'm not sure if
that's why the Dr. moved her Appt. up. But we are glad that he did. They will
be releasing her index and pinkys this time. Also going to redo one of her
thumbs. Because the skin graft didn't take before and there is no space
between it and what will be her index finger.  I hope you all have a wonderful
XMAS and a Happy New Year. Be thinking of our little angel "Carlee" on
Dec.31st.

Sincerely,
Cristy and Carlee in Florida

--part0_914206136_boundary--
=========================================================================
Date:         Sun, 20 Dec 1998 20:22:07 -0800
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Thomas Troudt <;ttroudt@SPRYNET.COM>
Subject:      forgive my mistake
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit

Hi to all,
    I just dug out my copy of the dental bill that I wrote to you about.
Please forgive my ignorance.   It is a House Bill of Colorado only.  I was
under the impression that it was a federal bill instead of a state one.  It
would be a good idea to talk to your congressmen to see if such a bill
exists in your state as well.  Again, please excuse my mistake.  Diana
Troudt- Greeley, Co.
=========================================================================
Date:         Sun, 20 Dec 1998 22:02:01 -0600
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         tcgraves <;tcgraves@BELLSOUTH.NET>
Subject:      Re: Oral/dental insurance
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit

Diana,
I also would like to have a copy of the bill.
Carol Graves
370 Oakland Rd
Madison, AL  35758
-----Original Message-----
From: Richard Thornquist <;rlthorn@EARTHLINK.NET>
To: APERT@LISTSERV.AOL.COM <;APERT@LISTSERV.AOL.COM>
Date: Sunday, December 20, 1998 9:16 AM
Subject: Re: Oral/dental insurance
 

>  I have a copy of the House
>>Bill 98-1243 if anyone is interested in a copy, let me know and I will
>snail
>>mail a copy to you.  Diana Troudt- Greeley Co.
>
>>
>
>Diana,
>
>I would love a copy of that if you don't mind.  I have already spoken with
>my insurance company and they don't believe that it is covered, but that
>would be up to the nurses on staff.  We do have one plus, our health
>insurance and dental insurance for Andrew is under one company.  The other
>thing to consider, is if any of you have state health insurance, they may
>pay for it if your eligible.  We have MassHealth as well as Tufts.  It
seems
>MassHealth has not paid for anything really, but it is good to have in case
>of emergency.  My e-mail address is rlthorn@earthlink.net
>
>Thanks so much.
>
>Lynn Thornquist
>
=========================================================================
Date:         Mon, 21 Dec 1998 13:00:10 -0500
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <;APERT@LISTSERV.AOL.COM>
From:         Ryan Bradley <;Bradleys_r@COMPUSERVE.COM>
Subject:      (no subject)
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 8bit

Hello Alice;

What a wonderful story.  Praise The Lord!!

So do not fear, for I am with you;
do not be dismayed, for I am your God.
I will strengthen you and help you;
I will uphold you with my righteous right hand.
         Isaiah 41:10

God is Faithful.

Have a Merry Christmas.

Martha
Algonquin, IL