Hello out there and Happy Holidays to you!

My little town in Ohio is covered with a thin blanket of snow.  Rumor has
it we are in for ice covered walks and roads soon.   We are all bracing
ourselves for the morning challenges:  getting to the car and then to
work without any broken bones!  Once at work we are bracing ourselves for
the rush of people who didn't fare as well as we did and suffered the
broken legs, hips and arms.  On the unit where I work, we see a LOT of
hip and leg injuries common to the elderly.  This is where I am today,
December 29, 1998.

I have been lurking a lot lately, listening in on the conversations here
and there.  I sure hope Little Zoey is bouncing back more and more every
day.  My nephew got that nasty bug when he was barely a year old. My
thoughts and prayers are with you Christina.

Thank you Claudia for reminding me of a great book.  "The Precious
Present"  holds a special place on my bookshelf.  I can remember finding
that book and reading it right there in the bookstore.  Before I knew it,
the tears were rolling and my friend was looking at me with curious eyes.
 She refused to read it at that time, seeing the effect it had on me.
Once she did, she had her own copy!

Closing now to continue on with my prayerful evening.  Please know you
will be among my counted blessings.

Joanne, in Ohio
Cold as all get out!
=========================================================================
Date:         Wed, 30 Dec 1998 20:50:27 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         Nodrmat26@AOL.COM
Subject:      Re: Zoey's Sick
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hello all!  Zoey's Mom here.
I wanted to thank everyone who has kept Zoey in their thoughts and prayers.
She has taken another step in the right direction.  She's come off her high-
frequency vent and is on a conventional vent.  She's looking better and I'm
glad she's two steps away from ECMO.  Coicindently, another baby came in last
night on ECMO, only two months old.  I feel for her family and feel so lucky
that Zoey turned around.
I'll keep updating as things happen.
Christina
San Antonio
=========================================================================
Date:         Wed, 30 Dec 1998 21:01:19 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         Marilyn Williams <Mbwill43@AOL.COM>
Subject:      note
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hi All,Carlee's ,Grandma,here Just want everyone to be praying at 8:00 a.m.
Dec. 31 as Carlee goes into surgery for the release of her pointie fingers and
pinkies. we thought they may put it off but said to day she did not have a
cold so it's a go. will let you know how she does. glad Zoey, is doing better.
I'll keep her  In my prayers. love to all Marilyn
=========================================================================
Date:         Wed, 30 Dec 1998 21:33:40 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         Firefli007@AOL.COM
Subject:      Re: Zoey's Sick
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hello all... hapy Holidays...

This is Jenny from georgia... Christmas and the holiday rush has kept me away
for awile but things are beginning to slow down.
Christina.. i am soo happy things are a bit better for Zoey.  i pray that she
continue to do OK.. You all are in my thoughts and prayers.
Thank you so much Teeter and Don and Cat for this great listserv and all of
the hard work you put into it.
May God continue to Bless you all for 1999 and into the next millenium....
Peace and Love
Jenny
PS welcome to all of the new freinds as well... happy Holidays!
=========================================================================
Date:         Thu, 31 Dec 1998 12:10:26 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         GSieb91515@AOL.COM
Subject:      Re: note
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Carlee and family--

Sending lots of love and prayers your way today on a successful surgery.
Hoping the recovery goes well.

We are visiting family in Va. for the holidays and just checked our mail from
here.  Things were extremely hectic before Christmas and I didn't get a chance
to properly wish everyone a very safe, HEALTHY and happy holiday season.  We
wish all our families the best for 1999 and pray that our children are well.

HAPPY NEW YEAR!

The Sieberts
George, Brenda, Melissa and Jonathan
Houston, Texas
=========================================================================
Date:         Thu, 31 Dec 1998 10:18:26 -0700
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         baconsmith <bluenose@TELUSPLANET.NET>
Subject:      Re: Zoey's Sick
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"

Thanks Christina for the update and the good news.  Have been thinking about
your little girl and hoping to hear this.  Will keep Zoey uppermost in our
thoughts here in very cold Calgary.  Hope you are also getting some rest,
Christina.  Take  care.

Pat (EvaJessie T4facial cleft)
 

>Hello all!  Zoey's Mom here.
>I wanted to thank everyone who has kept Zoey in their thoughts and prayers.
>She has taken another step in the right direction.  She's come off her high-
>frequency vent and is on a conventional vent.  She's looking better and I'm
>glad she's two steps away from ECMO.  Coicindently, another baby came in last
>night on ECMO, only two months old.  I feel for her family and feel so lucky
>that Zoey turned around.
>I'll keep updating as things happen.
>Christina
>San Antonio
>
=========================================================================
Date:         Thu, 31 Dec 1998 20:56:07 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         Marilyn Williams <Mbwill43@AOL.COM>
Subject:      note
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

Hi All, Carlee's Grandma her again. she came thru 51/2 hrs. of surgery today
and did great. bad news thought the Dr. said the three middle fingers are one
large mass of fused bone so she wil end up with only three fingers and a thumb
an each hand. but they will be functionable so guess we can't ask for more
then that. thank you all for your prayers and thanks to Dori and Mechelle for
the note you will never know how much these small words of encouragement means
to us all. May God bless all of you reads this. Love Marilyn
=========================================================================
Date:         Thu, 31 Dec 1998 21:02:32 EST
Reply-To:     Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender:       Information exchange and Internet safe haven for Apert Syndrome
              and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From:         Marilyn Williams <Mbwill43@AOL.COM>
Subject:      note
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit

I forgot to say that they only did Carlee's pinkies today and did alittle work
on her big toes so the nail won't engrow like her nails on her hands do.
thanks again. Iwill keep Zoey inmy prayers. Marilyn