That is one of the ingredients of sudufed.
=========================================================================
Date: Mon, 1 Feb 1999
06:59:09 -0600
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: "D. Jefferson"
<djeff@MIDWEST.NET>
Subject: Re: Chondrodisplasia
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Greetings,
I have a question. Has anyone heard of Chondrodisplasia syndrome?
A
family in my sister-in-laws church had a baby two weeks ago with this
syndrome. They are feeling overwhelmed and are seeking support.
I spoke
to the Grandmother Saturday. The family would like to locate
others with
the syndrome.
I made an attempt to find information on the net, however, since I'm
not a
very experienced web crawler, I found nothing. I would appreciate
any
suggestions on how to get information about this syndrome. I
know that
several of you have more experience searching the net and might be
able to
suggest a site.
On a personal note, all is well here. Seth looks and feels great.
He has
gained weight and has had a growth spurt. He is going to be a
tall boy.
The fact that he missed over a month of school didn't seem to effect
his
performance. Thank goodness for Reader Rabbit 2nd Grade.
We are gearing
up for another surgery in March. We will fly to Miami to have
both hands
done by Dr. Khouri. Seth is not thrilled about having both arms
in
bandages but then again neither am I. It will be mostly soft
tissue,
deepen web spaces, etc. We are looking forward to meeting the
Miller's.
We will stay there a week, so, I hope to go to the Keys.
I have always
wanted to seem them.
Hope all is well. I enjoy hearing about your adventures and how
everyone
is doing. I am in class full time this semester so I will probably
have to
keep a low profile. I was going to switch to the University Server
but
after talking to the support staff I changed my mind. I wasn't
what they
said as much the pitiful look they gave me that made me realize that
I was
about to make a big mistake.
Peace, Dori
Dori A. Jefferson
djeff@midwest.net
=========================================================================
Date: Mon, 1 Feb 1999
07:32:28 -0600
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: "Allison's: GO
USA, Inc" <gousa@KC.NET>
Subject: Re: Chondrodisplasia
In-Reply-To: <199902011255.GAA13072@cdale3.midwest.net>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hi Dori!
Spelled " chondrodysplasias " put in your web search engine should find
some results.
Mike Allison
gousa@gousainc.com
Skeletal dysplasias (also known as bone dysplasias, osteo-, osteochondro-
or chondrodysplasias, or dysostoses) are genetic conditions affecting
growth and development of the skeleton. The clinical consequences may
range
from mild shortness without other complications to severely reduced
stature
("dwarfism") with bone deformity and dysproportion between segments
of the
body. The most severe chondrodysplasias are not compatible with life.
Although reduced stature or bone deformity may be most evident to the
eye,
other organs or tissues (such as the nervous system, the inner ear,
the
eye, the joints, the muscles, the liver, the kidney, or the immune
system,
just to name some) can be affected in individuals with skeletal dysplasias,
depending on what the precise diagnosis is. Obtaining an accurate diagnosis
is important. Even if for most conditions the possibilities for treatment
are limited, many complications can be avoided, or their onset delayed,
by
means of physical therapy, orthopedics, or surgery. Regular medical
examinations by a physician knowledgeable of skeletal dysplasias, and
who
may refer to the appropriate specialist, is important. Since most skeletal
dysplasias are recognized at birth or during childhood, the relevant
expertise is usually found in Children's Hospitals throughout the world.
=========================================================================
Date: Mon, 1 Feb 1999
11:02:13 +0000
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Comments: Authenticated sender is <jgibson2@POP.erols.com>
From: jgibson2@EROLS.COM
In-Reply-To: <19990128.210124.7646.1.chanan8@juno.com>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
> pseudoephedrine is exactly what all the doctors are telling me I reacted
> to. Isn't that sudafed? I'm confused. Nonetheless,
I've sworn off all
Sudafed is one of the brand names of Pseudeoephedrine. It's in
many
of the sinus medications and if you've had a bad reaction to it,
you'll need to carefully read ANYTHING you take for sinuses or
allergies. If in doubt, ask the pharmacist. Over the counter
drugs
are not necessarily safe for all people. Pseudoephedrine is just
one
example. Some people get tachycardic (rapid heartbeat), some
have
blood pressure elevations, my husband gets sleepy (not supposed to
happen), a co-worker developed a nearly fatal reaction (rare, but her
son had it too) that causes skin and connective tissue destruction.
MOST people just get relief from sinus pressure.
Seldane is the drug that was taken off the market for killing
people -- generally in combo with E-mycin or one of the antifungals.
Allegra is the "safe" replacement. I had a very nasty reaction
to
Seldane (not cardiac), so I'd be afraid to take Allegra. I don't
know anything about Claritin, not even what is in it.
Judy
Judy Gibson
jgibson2@erols.com
=========================================================================
Date: Mon, 1 Feb 1999
19:12:32 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: soft sopts and hand surgery
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Stephanie-
Yes the sutures can refuse. The surgeons should be able to tell
if this is
the case. Has she had a followup CT scan? I have read about
the technique
you described for Carrolines skin grafts. The literature I read
was from the
UK. I don't believe this is the norm in the US. Jonathan
has had 4 hand
surgeries and they have all been from one side of his groin.
The incision is
moved slightly up each time but looks extremely good considering they
take a
full thickness of skin each time. Jonathan's skin grafts looks
great where
his fingers have been released. We have one more to go on March
1. I
strongly urge you to get a second opinion. Feel free to call
us anytime at
281-360-8573.
Brenda
Houston
=========================================================================
Date: Mon, 1 Feb 1999
19:12:34 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: Catching up!
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Mechelle-
Jonathan walked at 14 months but I have heard from other parents a wide
range
of ages. The reason the fingers don't bend is because the particular
tendons
don't function properly to bend that middle joint. We have been
in OT since 1
month old and I strongly advise it. Not necessarily because it
is needed to
function but because of all the interaction/discipline/gross and fine
motor
skills. Jonathan is very mobile but is speech delayed.
He has started to
sign a bit and every now and then a word will slip out. We had
tubes put in
last Nov. and I had hoped to see more improvement by now. We
have increased
his speech therapy to once a week and I have quit my job to work with
him
more. I think we are on the verge.
Typically the cranial surgery releases the sutures and some remodeling
is done
along with an orbital advancement, where they push the forehead out
to create
more of a brow ledge and protect the eyes.
Hope this helps.
Brenda
Houston
=========================================================================
Date: Mon, 1 Feb 1999
19:12:28 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: soft sopts and hand surgery
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Jenn,
How do you get Jordan to sit still long enough for hair cuts.
I attempted my
only little trim in the back of Jonathan's and just as I snipped he
moved.
Now I have to wait until that side grows in before I take him to the
professionals. Jonathan's hair has come in very curly and you
can't do a
thing with it but let it go it's own way.
Sending prayers and best wishes as Jordan goes in for surgery today.
Let us
know how it goes.
Brenda
Houston
=========================================================================
Date: Mon, 1 Feb 1999
19:12:35 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: DARYL'S SURGERY
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Denise,
Sorry to hear about the incidents during surgery. But thank goodness
they
went in when they did to make more space. Hope recovery is going
well.
Brenda
=========================================================================
Date: Mon, 1 Feb 1999
19:46:40 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Copperhd87@AOL.COM
Subject: That heavy head!
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Greetings to everyone, especially the newcomers. I've enjoyed
lurking for
quite some time now. Thank you so much for sharing your children's
lives.
All you share is very much appreciated.
My son, Mitchell, has only sagittal craniosynostosis, not Apert's.
His head
has always been over the 100th percentile and of course was very
oddly shaped
before his first surgery at 3 months.
At four months, he was still making no effort to hold up his head or
roll
over. We started working with a physical therapist, and it made
such a big
difference. We saw one therapist for two weeks, then changed.
Immediately we
could tell a difference. Mitchell seemed to make progress after
every visit.
Once he could hold his head up, he became more aware of his surroundings
and
became more and more active. I really think that the sooner they
can do the
things they are supposed to do, the sooner they will do other things.
Mitchell did not walk until he was almost 16 months old. He is
no longer in
therapy.
This is my advice. (I am only a mother and base my advice totally
on my
individual experience.) As soon as you think there might be a
delay, get your
child in the best therapy you can afford ASAP. If you don't think
you have a
great therapist, find one that is.
The most effective therapy seemed to be when Mitchell would lay on his
tummy
on the large therapy ball and we would roll it forward while holding
a toy in
front of him. He would have to hold up his head to see.
You can get these
large balls at Wal-Mart.
Good luck!
Resa
=========================================================================
Date: Mon, 1 Feb 1999
22:32:02 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: ETolson643@AOL.COM
Subject: Re: LICENSE
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hello to all
Tim will get his license eventually I am sure. You are so right
about the
self-esteem of having a license. My concern with his driving
ability is
really centered around his judgment and his attention span. I
think we can
work with the physical issues...even if it requires some modifications.
As he
gets older and I see him maturing, I know he will be ready to drive.
Another note on self-esteem...Tim had his first real job during the
Christmas
season at Old Navy (a Gap subsidiary). Tim worked taking in new shipments,
folding clothes and stocking the shelves, pricing items, and helping
customers
find things. He felt so great earning money and he is an excellent
worker. I
think they will call him to work again in the spring when business
begins to
pick up.
Beth Tolson
=========================================================================
Date: Mon, 1 Feb 1999
21:55:17 -0800
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: rreed <rreed@CABLEONE.NET>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi all,Max here! Iam been lurking too, and I thought I would throw in
my two
cents with what it's worth. I asked my mom about when I was little
if I did
all the things that normal kids did,(like crawling, walking and talking
and
she said that I crawled at the normal age and I walked at the age of
a year
or so she wasn't sure but she felt it was close in the same age as
my sister
and brother walked. You see,she didn't really have any guide lines
to go by
for aperts, so she just used my brother and sister as to what I should
be
doing when I reached their age, and I did those things like they did
when I
reached their age.I had my hand surgerys when I was about 4 or 5 my
mom
wasn't really sure on the ages of my surgerys but I know from seeing
pictures that I was around 4 to 6.
Beth, you know it's alright to
worry about Tim getting his license.
That's how us kids know that you care about what happens to us I didn't
get
my license until I was 18 and even then my mom worryed. But that was
ok
because I knew she was just being my normal Mom. She stills worrys
about me
and my sister and brother. But I guess thats what being a Mom is all
about.
Because now Iam worrying about my own daughter. She's 15 and wants
to get
her permite and a job all this summer, and I keep telling her that
I don't
think she"s ready but she thinks she is. I want her to wait till next
year
that way she'll get drivers Ed at school and she'll be older then and
I'll
be more ready then too. I just don't want her to grow up so fast. That's
great that Tim was able to get a job, I know that when I got my first
job it
did wonders for my self-esteem. I new that I could go places when I
had a
job and a car. I'll be praying for him this spring on the job issue.
I will
also be praying for all the other little ones who are due for surgerys
and
for their Mom and Dad's I know it isn't easy seeing their babys go
through
surgery. Well Take Care. Happiness always Maxine (Max) in Modesto,
Over cast
Calif.
=========================================================================
Date: Tue, 2 Feb 1999
22:34:44 +1300
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Howard &
Ann <howrdnan@IHUG.CO.NZ>
Subject: Re: Chondrodisplasia
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hello Dori
Can I safely assume this is aka "dyschondrodysplasia" or "achondroplasia"?
I used gohip ( www.gohip.com ) which uses 8 search engines at once, so came up with quite a heap of information, most of which is heavy going. But I did find http://babynet.ddwi.com/tlc/pregnancy/achondro.html and have attached a copy of this file to a separate message to you. If it is the same thing then this would be useful for your contact as it is written in parent-appropriate information.
Unfortunately after the achondro page I couldn't get any further than the commercial pages which was very frustrating as I am urgently trying to get hold of parent-appropriate information on ODDD Syndrome/Oculodentodigital Dysplasia Syndrome. We want this info for a family coming for dinner in two days' time and so far I have only found the technical stuff. With only 85 reported cases worldwide I guess it is not to be wondered at!
If anyone can help me with the ODD query it would be appreciated. I have found the Parent to Parent site but can't access the information, though I know they have it on their files. I'm hoping they will send it by email!
Networking can be soooo helpful!!
Cheers
Ann
NZ
=========================================================================
Date: Tue, 2 Feb 1999
06:23:48 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Jack and Raquel
<jara1@BELLSOUTH.NET>
Subject: [Fwd: FW:]Internet charge
MIME-Version: 1.0
Content-Type: multipart/mixed; boundary="------------DC93F0DA6DCFB29BA61653A0"
This is a multi-part message in MIME format.
--------------DC93F0DA6DCFB29BA61653A0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hello everyone,
This is an e-mail that was sent to everyone corporate wide in our
company from one of our employees, we are an internet based company
which would be highly affected if this were to happen. I know
our
listserv would be too. Please read below and send your comments
to the
legislators e-mail......thanks...
Raquel Miller
--------------DC93F0DA6DCFB29BA61653A0
Content-Type: message/rfc822
Content-Transfer-Encoding: 7bit
Content-Disposition: inline
Received: from mail3.bellsouth.net (mail3.bellsouth.net [205.152.32.6])
by mail.mia.bellsouth.net
(8.8.8-spamdog/8.8.5) with ESMTP id PAA22527;
Mon, 1 Feb 1999 15:28:00
-0500 (EST)
Received: from [206.98.168.5] ([206.98.168.5])
by mail3.bellsouth.net (8.8.8-spamdog/8.8.5)
with SMTP id PAA13443;
Mon, 1 Feb 1999 15:27:47
-0500 (EST)
Received: from mail.1stmtg.com by [206.98.168.5]
via smtpd (for
mx.bellsouth.NET [205.152.32.6]) with SMTP; 1 Feb 1999 20:26:33 UT
Received: by mail.1stmtg.com with Internet Mail Service (5.5.2232.9)
id <D5727KLM>; Mon, 1
Feb 1999 15:19:01 -0500
Message-ID: <0582E9DA7B6FD211B76700A0C9EA04231FE0DE@FMNJ01EXCH>
From: Raquel Miller <RaquelMiller@1stmtg.com>
To: "'jara1@bellsouth.net'" <jara1@bellsouth.net>,
"'romi4@bellsouth.net'"
<romi4@bellsouth.net>
Subject: FW:
Date: Mon, 1 Feb 1999 15:25:12 -0500
MIME-Version: 1.0
X-Mailer: Internet Mail Service (5.5.2232.9)
Content-Type: text/plain;
charset="iso-8859-1"
Check this out....
Raquel
-----Original Message-----
From: Michael Loijos
Sent: Monday, February 01, 1999 1:25 PM
To: USEveryone
Subject:
Here is something that needs everyone's attention Now!!
CNN stated that the government would, within the next 2 weeks, decide
to
allow or not allow a CHARGE to your phone bill
equal to a long distance
call EACH & EVERYTIME you access the internet. Congress will
be voting on
this matter in less than 2 weeks.
Please e-mail your representative @
http://legislators.com/a2s2/elecmail.htm
<http://legislators.com/a2s2/elecmail.htm>
--------------DC93F0DA6DCFB29BA61653A0--
=========================================================================
Date: Tue, 2 Feb 1999
08:13:22 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Doug Lee <DOUGLEE@JWHOMES.COM>
Subject: Asher's surgery
MIME-Version: 1.0
Content-Type: text/plain
Although I rarely write, I was thrilled to find this network of people.
It has been a big help to my family. My daughter, Asher (born
10/05/98
with Aperts) will have her first cranial surgery this Friday at Egelston
Children's hospital in Atlanta. We appreciate all the support
from this
group and will update you on the surgery early next week. Thank
you
all.
Doug Lee
=========================================================================
Date: Tue, 2 Feb 1999
09:16:16 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Mary Bresnahan
<Munch35738@AOL.COM>
Subject: Re: Allera
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hey, Judy Allegra is safe and there are no side effects. I also
had a
reaction to Seldane. I am glad this drug was taken off the market.
Allegra
has really helped me with my severe chronic allergies. I live
in Florida and
everything grows year round and the pollen is there. You could
ask your
doctor for a sample and try it if you want to attempt it. I found
that my
asthma has decreased since I started the drug. Mary.
=========================================================================
Date: Tue, 2 Feb 1999
09:34:05 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Mary Bresnahan
<Munch35738@AOL.COM>
Subject: Re: [Fwd: FW:]Internet charge
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Thanks for the warning I am sending it to my friends. Mary, Jacksonville
Florida.
=========================================================================
Date: Tue, 2 Feb 1999
08:15:49 -0800
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: christina stile
<cmstile@YAHOO.COM>
Subject: Internet charge
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
thought you might like to know--christina
---Gregory Stephen Lester <gsl+@andrew.cmu.edu> wrote:
>
>
> Sound like an urban legend type thing, so I checked on it:
>
> http://urbanlegends.miningco.com/library/weekly/aa012099.htm
>
> and it is just a rumour...everyone breath...
>
> g
>
==
toodles.
christina stile
cmstile@yahoo.com
_________________________________________________________
DO YOU YAHOO!?
Get your free @yahoo.com address at http://mail.yahoo.com
=========================================================================
Date: Tue, 2 Feb 1999
11:22:20 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Jenngram@AOL.COM
Subject: Re: soft sopts and hand surgery
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Well, actually I cut Jordan's
hair in the bathtub...its horrible on my back,
but its the only way I can entertain him long enough to get the job
done!!
Mind you, when he has a haircut its a full head of hair that needs
cutting, so
it takes a while. But he plays w/ toys, mirrors, soap, shampoo botles,
bubbles...ANYTHING to keep him occupied...and even then its a bit difficult
after about 10 minutes..and then I can't stand up straight the rest
of the
night!!!!!!
Anyway, we are home with all 5 fingers now on the left hand.....his
Dr. said
it would be in Gods hands if this one made it, and so far it looks
like our
prayers were answered. really, all I asked for was that he make it
out of
surgery...if we got another finger that would be a bonus. The ring
finger was
REALLY pale at first, but since then its pinked up a bit wiht good
refill and
was even bleeding, so we know we have good blood flow. He even slept
through
the night...don't ya just hate me!!!! But these next few nights will
be the
true test!!!
Thanks to everyone for the thoughts and prayers. We head back in, in
April
(after a visit to see my folks in Houston in March for some R&R)
to finish the
left hand...boy will I be glad when all this is done.
Jenn(Tampa/St. Pete)
=========================================================================
Date: Tue, 2 Feb 1999
13:50:32 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Timothy Holt
<tholt@WEBTV.NET>
Subject: Re: Chondrodisplasia
In-Reply-To: Howard & Ann <howrdnan@IHUG.CO.NZ>'s message
of Tue, 2 Feb 1999
22:34:44 +1300
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
There is a Support Parent Network that has alot of information, you
might want to call them. They have information about any disease,
disability, or service for children and families. They deal with
specific health problems, disabilities, and handicaps. Their
number is
1-800-852-0042. There is also another place called exceptional
children's assistance center. They off parents of special need children
Infomation and referral services. Their number is 1-800-962-6817.
They
offer more services such as support, lending libraries and much more.
I hope this helps you! Please let me know!!!
Tim & Mechelle Holt address:tholt@webtv.net
=========================================================================
Date: Tue, 2 Feb 1999
14:12:47 +0000
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Comments: Authenticated sender is <jgibson2@POP.erols.com>
From: jgibson2@EROLS.COM
Subject: Re: Allera
In-Reply-To: <3999bae0.36b708b0@aol.com>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
My reaction to Seldane wasn't even in the PDR.
I developed
severe deep muscle pain and foot drop. It was so bad I started
wondering what was wrong -- then realized I'd been taking Seldane for
about 3 days when it hit. 2 of my sisters had identical reactions.
None of us is willing to risk Allegra. My husband takes it and
loves
it, though. It's great stuff for him, but I'll stick to tiny
doses
of Benadryl. I buy the pediatric elixir and take 1/2 tsp -- about 1/4
of an adult dose. It works and no significant side effects.
> Hey, Judy Allegra is safe and there are no side effects. I also
had a
> reaction to Seldane. I am glad this drug was taken off the
market. Allegra
> has really helped me with my severe chronic allergies. I live
in Florida and
> everything grows year round and the pollen is there. You could
ask your
> doctor for a sample and try it if you want to attempt it. I
found that my
> asthma has decreased since I started the drug. Mary.
>
Judy Gibson
jgibson2@erols.com
=========================================================================
Date: Tue, 2 Feb 1999
14:53:13 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: ROBIN L HILL
<CARMENRAE@PRODIGY.NET>
Subject: Re: soft sopts and hand surgery
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Glad to hear Jordan is home from the hospital and it appears all went
well.
Carmen Rae is going in on Friday (2/5/99) to release pinkies
on both hands
and to possibly deepen web space on thumbs. Anyone else experience
the web
space between thumb and index "creeping" up? Anyway, keep Carmen
Rae and
Asher Lee in your prayers on Friday. Both go in for surgery about
the same
time at Egelston Children's hospital. Take care; hope everyone
else is
doing well, recovering from surgery, etc.
Robin Hill
----------
> From: Jenngram@AOL.COM
> To: APERT@LISTSERV.AOL.COM
> Subject: Re: soft sopts and hand surgery
> Date: Tuesday, February 02, 1999 11:22 AM
>
> Well, actually I
cut Jordan's hair in the bathtub...its horrible
on my back,
> but its the only way I can entertain him long enough to get the job
done!!
> Mind you, when he has a haircut its a full head of hair that needs
cutting, so
> it takes a while. But he plays w/ toys, mirrors, soap, shampoo botles,
> bubbles...ANYTHING to keep him occupied...and even then its a bit
difficult
> after about 10 minutes..and then I can't stand up straight the rest
of
the
> night!!!!!!
>
> Anyway, we are home with all 5 fingers now on the left hand.....his
Dr.
said
> it would be in Gods hands if this one made it, and so far it looks
like
our
> prayers were answered. really, all I asked for was that he make it
out of
> surgery...if we got another finger that would be a bonus. The ring
finger
was
> REALLY pale at first, but since then its pinked up a bit wiht good
refill
and
> was even bleeding, so we know we have good blood flow. He even slept
through
> the night...don't ya just hate me!!!! But these next few nights will
be
the
> true test!!!
>
> Thanks to everyone for the thoughts and prayers. We head back in,
in
April
> (after a visit to see my folks in Houston in March for some R&R)
to
finish the
> left hand...boy will I be glad when all this is done.
>
> Jenn(Tampa/St. Pete)
=========================================================================
Date: Tue, 2 Feb 1999
18:53:25 -0600
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: "D. Jefferson"
<djeff@MIDWEST.NET>
Subject: Re: Thanks!!!
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
To everyone that responded to my question,
Thank you for the good information and sources. I will try to
get some
research time in on the weekend. Some of the statements the Grandmother
made make sense now that I have a general idea of what the baby has.
Warmly, Dori
Dori A. Jefferson
djeff@midwest.net
=========================================================================
Date: Tue, 2 Feb 1999
19:58:14 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Marilyn Williams
<Mbwill43@AOL.COM>
Subject: note:prays for allthe
kids
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
hi Carlee's grandma here. yes Carlee has trouble with the thumbs her
mom can
tell you more about it but her biggest problem is nails getting
infectionin
them she is on antibotics again for her hands it's bad to have to give
her med
all the time . will have Asher and Carmen Rae in our prays take care
and God
bless. Marilyn
=========================================================================
Date: Tue, 2 Feb 1999
21:34:27 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: "(Marianne Camous)"
<Camous@AOL.COM>
Subject: Re: Allegra
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
If you're looking for a non or minimally sedating antihistamine, there
are
also Claritin or Zyrtec. Both are safe- My girls use the Claritin Redi-tabs
as
they "dissolve" in the mouth with an OK taste. Also, you allergy sufferers
can
try a nasal steroid spray for the runny noses with even fewer
side effects.
My favorite is Flonase!
Marianne Camous,
the busy ER PA in the middle of flu season!!
=========================================================================
Date: Wed, 3 Feb 1999
20:53:28 +1300
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Howard &
Ann <howrdnan@IHUG.CO.NZ>
Subject: Re: soft sopts and hand surgery
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
You could always sit in the bath with him.
It is also a good place to put them when they are eating spaghetti.
:-)
Ann
At 11:22 AM 2/02/99 EST, you wrote:
> Well, actually I cut Jordan's
hair in the bathtub...its horrible on my back,
>but its the only way I can entertain him long enough to get the job
done!!
>Mind you, when he has a haircut its a full head of hair that needs
cutting, so
>it takes a while. But he plays w/ toys, mirrors, soap, shampoo botles,
>bubbles...ANYTHING to keep him occupied...and even then its a bit
difficult
>after about 10 minutes..and then I can't stand up straight the rest
of the
>night!!!!!!
>
=========================================================================
Date: Wed, 3 Feb 1999
14:35:52 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: ROBIN L HILL
<CARMENRAE@PRODIGY.NET>
Subject: Katie Beckett medicaid waiver
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Hello everyone. Robin Hill here. We are in the process of
applying for
the Katie Beckett medicaid waiver for Carmen Rae (in Georgia).
Do any of
you that live in Alabama know if they have this same medicaid waiver
or
something similar? I am trying to find information for a friend
whose son
was born with spina bifida. They have been denied for SSI and
Medicaid. I
know in Georgia the Katie Beckett medicaid waiver does not take income
into
effect. Do any of you know if Alabama has this or something similar?
Thanks for your help.
Robin
=========================================================================
Date: Wed, 3 Feb 1999
20:09:08 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Shirley Tanner
<TANRANCH@AOL.COM>
Subject: Re: Katie Beckett medicaid waiver
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hello Robin,
I live in Alabama & have never heard of the Katie Beckett medicaid
waiver.
Collin was denied SSI & Medicaid also due to income. I think that
is so
unfair. Sorry I can't be of more help.
Shirley Tanner
Hartford, AL
=========================================================================
Date: Wed, 3 Feb 1999
22:00:09 -0800
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: kurasmp@BELLATLANTIC.NET
Subject: [Fwd: DO NOT DELETE!! THIS REALLY
WORKS!!!!]
MIME-Version: 1.0
Content-Type: multipart/mixed; boundary="------------6FA7309711B"
This is a multi-part message in MIME format.
--------------6FA7309711B
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
thought everybody could use some Good Luck!!!
--------------6FA7309711B
Content-Type: message/rfc822
Content-Transfer-Encoding: 7bit
Content-Disposition: inline
Received: from mail7.bellatlantic.net ([207.68.32.38])
by immta2.bellatlantic.net
(InterMail v03.02.06 118 122)
with ESMTP id
<19990131224819.FIXM13172@mail7.bellatlantic.net>
for <kurasmp@bellatlantic.net>;
Sun, 31 Jan 1999 17:48:19 -0500
Received: from send201.yahoomail.com (send201.mail.yahoo.com [128.11.68.125])
by mail7.bellatlantic.net
(8.8.5/8.8.5) with SMTP
id RAA09659
for <kurasmp@bellatlantic.net>; Sun, 31 Jan 1999 17:48:16 -0500 (EST)
Message-ID: <19990131224450.360.rocketmail@send201.yahoomail.com>
Received: from [206.37.199.245] by send201.mail.yahoo.com; Sun, 31
Jan 1999 14:44:50 PST
Date: Sun, 31 Jan 1999 14:44:50 -0800 (PST)
From: Patrick Encinas <hondof16@yahoo.com>
Subject: DO NOT DELETE!! THIS REALLY WORKS!!!!
To: Ray Janssen <rayjanssen@hotmail.com>,
Paul Judge <ptjudge@ppp.kornet21.net>,
Mark Kuras <kurasmp@bellatlantic.net>,
Michael Leach <shottdy@hotmail.com>,
Brian Mendivil <ppcedoc@aol.com>,
Demetrio Aguila <mjolnirf16@yahoo.com>,
Alfredo Castellanos <acastel@aol.com>,
James Dvorak <dvorak@1stnetusa.com>,
Dag and Alicia Grantham
<dagnabg@soback.kornet21.net>,
Greg Hardison <JGHARDISON@aol.com>
MIME-Version: 1.0
Content-Type: multipart/mixed; boundary="0-304089172-917822690=:25071"
--0-304089172-917822690=:25071
Content-Type: text/plain; charset=us-ascii
Content-Disposition: inline
note: forwarded msg attached.
_________________________________________________________
DO YOU YAHOO!?
Get your free @yahoo.com address at http://mail.yahoo.com
--0-304089172-917822690=:25071
Content-Type: message/rfc822
X-Apparently-To: hondof16@yahoo.com via mdd202.mail.yahoo.com
Received: from imo19.mx.aol.com (198.81.17.9)
by mta109.yahoomail.com with SMTP; 31 Jan 1999 08:36:54 -0800
Received: from HUNNY4U1@aol.com
by imo19.mx.aol.com (IMOv18.1)
id 3KWWa20087
for <hondof16@yahoo.com>;
Sun, 31 Jan 1999 11:30:47 -0500 (EST)
From: HUNNY4U1@aol.com
Message-ID: <5388f420.36b48537@aol.com>
Date: Sun, 31 Jan 1999 11:30:47 EST
To: hondof16@yahoo.com
Mime-Version: 1.0
Subject: Fwd: FW: DO NOT DELETE!! THIS REALLY WORKS!!!!
Content-type: multipart/mixed;
boundary="part0_917800246_boundary"
X-Mailer: AOL 3.0 for Windows 95 sub 64
Content-Length: 13075
This is a multi-part message in MIME format.
--part0_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.1>
Content-type: text/plain; charset=US-ASCII
--part0_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.2>
Content-type: message/rfc822
Content-transfer-encoding: 7bit
Content-disposition: inline
From: KQONE@aol.com
Return-path: <KQONE@aol.com>
To: Eva_Encinas-P02913@email.mot.com, RUBisanz@aol.com, HUNNY4U1@aol.com,
hondof16@yahoo.com, R1694@aol.com,
Rujsd@aol.com
Subject: Fwd: FW: DO NOT DELETE!! THIS REALLY WORKS!!!!
Date: Sun, 31 Jan 1999 00:30:23 EST
Mime-Version: 1.0
Content-type: multipart/mixed;
boundary="part1_917800246_boundary"
--part1_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.3>
Content-type: text/plain; charset=US-ASCII
--part1_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.4>
Content-type: message/rfc822
Content-transfer-encoding: 7bit
Content-disposition: inline
From: ENCINASAMY@aol.com
Return-path: <ENCINASAMY@aol.com>
To: KQONE@aol.com
Subject: Fwd: FW: DO NOT DELETE!! THIS REALLY WORKS!!!!
Date: Sat, 30 Jan 1999 11:41:38 EST
Mime-Version: 1.0
Content-type: multipart/mixed;
boundary="part2_917800246_boundary"
--part2_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.5>
Content-type: text/plain; charset=US-ASCII
--part2_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.6>
Content-type: message/rfc822
Content-transfer-encoding: 7bit
Content-disposition: inline
From: JHornerjr@aol.com
Return-path: <JHornerjr@aol.com>
To: t-adams@mindspring.com, joy-atkinson@conv.mobile.org, Matt3567@aol.com,
deborah.collins2@gte.net,
cruma@bellsouth.net, ENCINASAMY@aol.com,
shaye@compuserve.com, pam_farmer@generalhealth.org,
cynthia.kirk@na.manpower.com,
Sped38d@aol.com
Subject: Fwd: FW: DO NOT DELETE!! THIS REALLY WORKS!!!!
Date: Fri, 29 Jan 1999 01:06:09 EST
Mime-Version: 1.0
Content-type: multipart/mixed;
boundary="part3_917800246_boundary"
--part3_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.aol.com.7>
Content-type: text/plain; charset=US-ASCII
--part3_917800246_boundary
Content-ID: <0_917800246@inet_out.mail.hotmail.com.8>
Content-type: message/rfc822
Content-transfer-encoding: 7bit
Content-disposition: inline
Return-Path: <chris_daughdrill@hotmail.com>
Received: from rly-ya02.mx.aol.com (rly-ya02.mail.aol.com [172.18.144.194])
by air-ya04.mx.aol.com (v56.24)
with SMTP; Mon, 25 Jan 1999 19:55:20
-0500
Received: from hotmail.com (f203.hotmail.com [207.82.251.94])
by rly-ya02.mx.aol.com
(8.8.8/8.8.5/AOL-4.0.0)
with SMTP id
TAA11597 for <JHORNERJR@aol.com>;
Mon, 25 Jan
1999 19:55:08 -0500 (EST)
Received: (qmail 13270 invoked by uid 0); 26 Jan 1999 00:55:00 -0000
Message-ID: <19990126005500.13269.qmail@hotmail.com>
Received: from 206.26.193.33 by www.hotmail.com with HTTP;
Mon, 25 Jan 1999 16:54:31
PST
X-Originating-IP: [206.26.193.33]
From: "Christi Daughdrill" <chris_daughdrill@hotmail.com>
To: ddaughdrill@sandersonfarms.com, ABH2770@aol.com,
bgoodman@merlin.ebicom.net,
bucksnturks@hotmail.com,
carlhaas@juno.com,
ckn@www.psrc.usm.edu, cbelkins@tislink.com,
JHORNERJR@aol.com,
RLEKKE@aol.com, BLMcIlwain@aol.com,
stronglaura@hotmail.com,
rmcdavitt@i-55.com, shakeytrace@webtv.net
Subject: Fwd: FW: DO NOT DELETE!! THIS REALLY WORKS!!!!
Date: Mon, 25 Jan 1999 16:54:31 PST
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
>From pritchet@epos.com Thu Jan 21 14:59:51 1999
>Received: by JUPITER with Internet Mail Service (5.5.2232.9)
> id <C8B469J1>; Thu, 21 Jan
1999 16:57:15 -0600
>Message-ID: <6BDC7FCA2705D211852B006097D8262A14EB0E@JUPITER>
>From: PRITCHET@epos.com
>To: lgd@gte.net, billyrhodes@mindspring.com, rawlsc@bellsouth.net,
> chris_daughdrill@hotmail.com,
tallyhuss@juno.com,
> Kathy.Pritchett@mdmnetwork.com,
malissiab@aol.com,
> sabrinar@mindspring.com, jml244@aol.com,
djmed@mindspring.com
>Subject: FW: DO NOT DELETE!! THIS REALLY WORKS!!!!
>Date: Thu, 21 Jan 1999 16:57:10 -0600
>MIME-Version: 1.0
>X-Mailer: Internet Mail Service (5.5.2232.9)
>Content-Type: text/plain;
> charset="iso-8859-1"
>
>
>
>-----Original Message-----
>From: Bobby Chandler [mailto:bchand@companet.net]
>Sent: Thursday, January 21, 1999 5:27 PM
>To: Stan Bamberg; Padre Richard Donohoe; MAJ Kraft; LTC Beard; LT
Dewey
>Parris; Joseph E. Boyett; Jenifer Kilcullen; Gwalton421; Gene Lewey;
CPT
>Woolley; CPT McVay; CPT Lawter; Cpt Dickey Sims; CPT Clowdus; Charles
>Rawls; Calvin J. Summers; Anne Austin
>Subject: Fw: DO NOT DELETE!! THIS REALLY WORKS!!!!
>
>
>
>-----Original Message-----
>From: LAUREN JONES <CROPLMJ@a1.njt.gov>
>To: INGRID BURNETT <CROPIPB@a1.njt.gov>; SARIA FLUELLEN
><CROPSEF@a1.njt.gov>; DOREEN RIVERS <CROPDER@a1.njt.gov>; MICHELE
ADAMS
><CROPMDA@a1.njt.gov>; LYNN GRADY-COSBY <CFINLMG@a1.njt.gov>;
SUZETTE
>McFARLAND <CWATSLM@a1.njt.gov>; C.LISA GREGORY <CFINCXG@a1.njt.gov>;
MARION
>KENNEDY <CROPMHK@a1.njt.gov>; TERESA TYLER-LEMON <CROPTTL@a1.njt.gov>;
Lori
>Maddox <CROPLAM@a1.njt.gov>
>Date: Tuesday, January 05, 1999 1:27 PM
>Subject: DO NOT DELETE!! THIS REALLY WORKS!!!!
>
>
>I need some good luck, so I had to send this on.
>Lauren
>
>I'm SO sorry about this, but I had to keep it going. The last
time I
sent
>this
>exact e-mail out, I got a new job and now I'm superstitous.
Start
thinking
>of
>something you really really want, cause this is astounding... the
person
>that
>sent this to me said their wish came true 10 mins after they read
the
mail
>so I
>thought what the heck.
>
>> > > > > >>>>> >>>
,,:cc,,,;.
>> > > > > >>>>> >>>
cc$$$$$$$$$$$$$cc
>> > > > > >>>>> >>>
cc$$$$$$$$$$$$$$$$$$cc
>> > > > > >>>>> >>>
c$$$$$$$$$$$$$$$$$$$$$$$$c
>> > > > > >>>>> >>>
,c$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
>> > > > > >>>>> >>>
,c$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
>> > > > > >>>>> >>>
,d$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$,
>> > > > > >>>>> >>>>
,$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$h$$$'
>> > > > > >>>>> >>>>
,$$$$$u$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
>> > > > > >>>>> >>>>>J$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$b$
>> > > > > >>>>> >>>>>$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
>> > > > > >>>>> >>>>>$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$
>> > > > > >>>>> >>>>
'$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$'
>> > > > > >>>>> >>>>>
'$$$$$$MMMMM'$$$$$$$$MMMMM'$$$$$$'
>> > > > > >>>>> >>>>>
'$$$$$$MMMM.$$$$$$$$,MMMM $$$$$$$$'
>> > > > > >>>>> >>
'$$$$$,M";;;
>> > '$$$$$$$$$$'M",,'",$$$$$$$'
>> > > > > >>>>> >>
?$$$$,<( ') $$$$$$$$$$
>,('')$$$$$'
>> > > > > >>>>> >>>>>>>
?$$$, <( ) $$$$$$$$$$( )$$$$?
>> > > > > >>>>> >>>>>
'$$$$$.'-'
$$$$$$$$$$$,'-',$$$'
>> > > > > >>>>> >>>>>>
$$$$$$$$$$$????$$$$$$$$$'
>> > > > > >>>>> >>>>>>
d$$$$$$$$$
$$$$$$$$$$b
>> > > > > >>>>> >>>>>>
$$$$$$$$$$$c,,,,c$$$$$$$$$$$$
>> > > > > >>>>> >>>>>>
"?$$$$P"" "$$$$$$???$$$$??"
>> > > > > >>>>> >>>>>>
$$$$$
>> > > > > >>>>> >>>>>>
$$$$$$c
>> > > > > >>>>> >>>>>>>
,$$$$$$$"c
>> > > > > >>>>> >>>>>>>
z$<$$$$$$$'$,
>> > > > > >>>>> >>>>>>>
z$<$$$$$$$$$'$c
>> > > > > >>>>> >>>>>>>
<$$$$$$$$$$$;?$
>> > > > > >>>>> >>>>>>>>
'$<$$$$$$$$$$$:$
>> > > > > >>>>> >>>>>>>>
?L$$$$$$$$$$$:$
>> > > > > >>>>> >>>>>>>>
?$$$$$$$$$$$d'
>> > > > > >>>>> >>>>>>>>>
> >
'$$$$$$$$$$F
>> > > > > >>>>> >>>>>>>>>
> >
'?$c'??3$F
>> > > > > >>>>> >>>>>>>>>
> >
CCC CCC
>> > > > > >
>.,,,,,.
>> > > > > >.,,,,,.
>
>You have been seen by the tweety bird. He will grant you one
wish.
Make
>your
>wish when the count down is over.
>> > > > > >>>>> >>>>>>>>>
> > >> 10..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 9..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 8..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 7..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 6..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 5..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 4..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 3..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 2..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> 1..
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >> **** MAKE A WISH******
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>> > > > > >>>>> >>>>>>>>>
> > >>
>Send this to 10 people within the hour you read this. If you
do, your
wish
>will come true. If you don't it will
>become the opposite.
>
>"One learns that the opinions formulated by the pens of our great
thinkers
>over
>the centuries are strange indeed."
>
>Jacques Lacan..."The Ethics of Psychoanalysis", 1959
>S.E. Cupp
>151 Dryden Rd. #609
>Ithaca, NY 14850
>sec30@cornell.edu
>scupp101@yahoo.com
>(607)275-3500
>
>
>
>
>
______________________________________________________
Get Your Private, Free Email at http://www.hotmail.com
--part3_917800246_boundary--
--part2_917800246_boundary--
--part1_917800246_boundary--
--part0_917800246_boundary--
--0-304089172-917822690=:25071--
--------------6FA7309711B--
=========================================================================
Date: Fri, 5 Feb 1999
13:10:50 +1300
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Howard &
Ann <howrdnan@IHUG.CO.NZ>
Subject: Pfieffer Syndrome
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Does anyone have Claudia Salazar's latest email address? pcbaas@HOME.COM doesn't work any more
Regards
Ann
NZ
=========================================================================
Date: Fri, 5 Feb 1999
10:20:09 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Don Sears <dsears@SCRS.STATE.SC.US>
Subject: Reminder re:Fwd: DO NOT DELETE!!
THIS REALLY WORKS!!!!
MIME-Version: 1.0
Content-Type: text/plain
Please do not send or forward chain letters through the listserv.
If
you have any questions about this policy, please contact me directly.
If you are about to forward something to the list that you got from
someone else, and it does not relate to Apert Syndrome, please send
it
to me first and ask whether it's appropriate to post to the listserv.
Don Sears
=========================================================================
Date: Fri, 5 Feb 1999
10:44:28 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Yonstein@AOL.COM
Subject: Re: Surgeries
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Best wishes to Carmen Rae
and Asher on successful surgeries Friday. Sending
prayers and well wishes to Atlanta for you both.
Glad to hear Jordan did sooooo well on his hand surgery. Sounds
like things
are going along real well for you guys.
Hope all is well with everyone else and best wishes to anyone else having
surgery.
Janine
=========================================================================
Date: Fri, 5 Feb 1999
13:30:41 -0800
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Thomas Troudt
<ttroudt@SPRYNET.COM>
Subject: Re: Katie Beckett medicaid waiver
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi to all,
Colorado has a program called Model 200 which is
strictly medicaid for
children who have high needs and is not income based. Our son
Derek has
been on it for a year now. We waited for 3 years for a spot to
open up for
him. I am willing to bet that most states have something similar
to this to
offer kids with high needs. We go through social services to
access this
and not the social security administration. I would have your
friend in
Alabama check with social services first. The social security
admin. has no
idea what it is. Just my two cents worth.
Diana Troudt
=========================================================================
Date: Fri, 5 Feb 1999
16:32:21 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Don Sears <dsears@SCRS.STATE.SC.US>
Subject: FW: Aperts
MIME-Version: 1.0
Content-Type: text/plain
Please reply directly to Becky. Thanks everyone, and have a great
weekend!
Don
> ----------
> From: joseph e cook[SMTP:beckycook1@juno.com]
> Sent: Saturday, January
30, 1999 4:22 PM
> To: CatNDon@aol.com
> Subject: Fw:Aperts
>
>
>
> --------- Forwarded message ----------
> From: BECKYCOOK1@juno.com
> To: apert@listserve.aol.com
> Date: Sat, 30 Jan 1999 15:52:42 -0500
> Message-ID: <19990130.155243.-75233.0.BECKYCOOK1@juno.com>
>
> HI! I have been contacted by a mom of a 9yo guy with Aperts...
I am
> an
> Occupational Therapist who uses the horse in therapy(Hippotherapy)
> anyway... this was the first time I had heard of Apert's and thought
> between mom and you guys I might come up to speed fast... Any helpfull
> info would be appreciated... you can e-mail me: beckycook1@juno.com
> or
> I'll check back on the web page... (This little guys symptoms of
> coordination problems, fine-motor difficulties due to missing IP's,
> and
> self-esteem issues are real treatable using the horse... but is there
> any
> problems you all may see, that I might miss???) He's also had
the
> numerous facial surgeries and has a trach. THANKS, Becky
>
=========================================================================
Date: Sat, 6 Feb 1999
17:00:20 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: ROBIN L HILL
<CARMENRAE@PRODIGY.NET>
Subject: Carmen Rae and Asher
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 7bit
Just wanted to let everyone know that Carmen Rae's hand surgery and
Asher's
cranial surgery both went well yesterday. Carmen Rae is home
and has not
let her wrapped arms stop her one bit! She is still pulling up
on
furniture and twirling in her excersaucer like she did before.
I just
can't say enough, "These kids are tough!!!!" Asher spent last
night in ICU
and was moved to a regular room this afternoon. She has the usual
swelling, but nothing unusual. Also, she seems to fit right in
with all
the other children. She apparently was able to get her head dressing
off
not too long after being moved from recovery to ICU. Anyway,
continue to
keep them both in your prayers. Take care.
Robin Hill
=========================================================================
Date: Sat, 6 Feb 1999
17:30:52 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Cristy Williams
<CARLEE0604@AOL.COM>
Subject: Re: Carmen Rae and Asher
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Hello. Glad to hear Carmen Rae and Asher's surgeries went well.
Hope everyone
else is doing good also. Carlee goes the 16th of this month for her
first
cranial surgery to be scheduled. Take care and keep in touch. We would
still
love to go to Myrtle Beach, if Carlee is not recovering from a surgery
at that
time.
Cristy and Carlee
in Florida
=========================================================================
Date: Sun, 7 Feb 1999
08:52:08 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Jenngram@AOL.COM
Subject: Re: Carmen Rae and Asher
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Glad to hear that Fridays surgeries went well.....and we'll keep Carmen
Rae
and Asher our thoughts through the recovery period as well.
Jenn(Tampa/St. Pete)
=========================================================================
Date: Sun, 7 Feb 1999
23:54:50 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Lisa Guyette
<LAM1126@AOL.COM>
Subject: Re: Carmen Rae and Asher
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7bit
Are Carmen Rae and Asher twins? If so I never even thought
that there could
be twins with Aperts. If so that must be so hard to juggle
the surgeries.
Wow!
Lisa Guyette
Mother of Samantha 3 months