I wanted to add, that Jordan's fingers too are/were fused at the tips...I
think this makes a big difference, but our doc was more concerned with
blood
vessels and nerves. If any of thedifits were to share common vessels
and
nerves then it wouldn't work to separate them. Since we did only
1 separation
at a time, this was one of those "wait and see" things every time we're
in for
surgery.
Jenn(Tampa/St. Pete)
=========================================================================
Date: Mon, 29 Mar 1999
10:32:21 -0500
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From: Ryan Bradley
<Bradleys_r@COMPUSERVE.COM>
Subject: What to say to other Children?
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: 8bit
Lisa:
We try not to make Michelle different from other kids. When a kid asks,
we
just tell them that God made Michelle different as he made everybody
else,
but that we are all the same inside.
When an adult asks we explain that Michelle was born with a syndrome
and if
they have any questions we try to explain it to them.
We have not had any negative experiences, and everybody that we have
come
across is extremely nice.
Martha Bradley
=========================================================================
Date: Mon, 29 Mar 1999
11:13:07 EST
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From: Mary Bresnahan
<Munch35738@AOL.COM>
Subject: Re: craniofacial centers
Mime-Version: 1.0
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If you go to WideSmiles on the Internet there is a list on there.
Mary
=========================================================================
Date: Mon, 29 Mar 1999
11:14:14 EST
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From: Mary Bresnahan
<Munch35738@AOL.COM>
Subject: Re: Lodging for families of
kids having surgery
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Also try the hospital there. There may have a list of places for
you to stay.
Mary
=========================================================================
Date: Mon, 29 Mar 1999
16:11:35 -0500
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From: Don Sears <dsears@SCRS.STATE.SC.US>
Subject: Be alert for the Melissa Virus.
This one is NOT a hoax.
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
you can tell the virus because you will have an email attachment named
list.doc. If you get this in the mail, do not open the document
-
delete the letter and empty your recycle bin.
Don
NEW YORK (Reuters) -
"Melissa," a computer
virus that can
overwhelm corporate
systems in a
mouse click, may have
infected more than 100,000 machines over
the weekend, forcing
at least some companies to shut electronic
mail systems.
"We are getting a
steady stream of phone calls this morning from
organizations who have
been affected by the virus," Jeff Carpenter
of the Computer
Emergency Response Team (CERT) at Carnegie
Mellon University in
Pittsburgh said Monday. CERT estimates the
bug has affected more
than 100,000 machines.
Carpenter said more
than 200 companies had complained about
the virus. "We believe
the problem is much larger. It's across the
board in types of
organizations -- and some very large companies
have been affected by
this," he said.
"Melissa" is a virus
that comes in the form of a document that lists
pornography sites on
the World Wide Web.
The bug creates a
flood of unwanted e-mails as the program
perpetuates itself
using pre-programmed "macros," software
embedded in Microsoft
Corp's Windows operating system that
sets off complex
computer functions with one command.
"I came in this
morning and I had 213 nasty e-mails attacking me,"
said Jennifer Mehlow,
a press relations specialist at
Fleishman-Hillard in
Austin, Texas, who said she had inadvertently
forwarded the virus to
several reporters.
Lucent Technologies
Inc. the world's largest telecommunications
equipment maker,
Friday received a copy of the tainted note. It
shut its e-mail system
for the weekend in an effort to inoculate
itself, a Lucent
spokesman said.
Several anti-virus
software makers, including market leaders
Network Associates
Inc. and Symantec Corp., have posted to
their Web sites
programs that can detect the virus and repair
systems that have been
infected.
While the
nuts-and-bolts technology of the virus is not new,
CERT's Carpenter
insists the bug's significance lies in its ability to
spread quickly, and
its mechanisms for sending itself via e-mail.
Symantec's AntiVirus
Research Center Web Site said that if a
user opened an
infected document, the virus would attempt to
start Microsoft's
Outlook application on the user's machine.
If Outlook is
successfully started, the virus will send e-mail to up
to 50 people in the
user's Outlook address book, with a copy of
the infected document
attached.
The U.S. Federal
Bureau of Investigation said it was investigating
the virus, which
apparently causes no permanent damage, such as
deleting files on a
computer's hard drive.
=========================================================================
Date: Mon, 29 Mar 1999
16:38:16 -0800
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From: Apert Mail <apertmail@USWEST.NET>
Subject: Our Spring Break
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Just wanted to send a Hello to everyone, and a welcome to some new
people I see that has joined us.
Wow what a spring vacation we had. Koera is an amazing place.
I am so happy to say that we got to meet the Yenneys and I want to
send
a great big thank you for inviting us into your home. Courtney
had such
a great time with Sarah, we all had a great time visitng.
I get the pictures back tomorrow I will scan some and send them to
you
Don.
(and anyone else who would like to see Courtney and sarah)
Take care all
OXOX
Dawn
=========================================================================
Date: Mon, 29 Mar 1999
22:13:03 -0800
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From: Robin MacDonald
<macdonal@GOLDEN.NET>
Subject: Re: The trip
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Joseph Chan wrote:
>
> >Hi guys...when are you coming to Niagara Falls...we will organize
a get
> >together for those close to here????
>
> We are planning a family trip to the Falls in mid-June. Would
be interested
> in a get together :)
>
> Rose
> La Mirada, CA
HI..what are your exact dates...???
=========================================================================
Date: Mon, 29 Mar 1999
22:15:15 -0800
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From: Robin MacDonald
<macdonal@GOLDEN.NET>
Subject: Re: The trip
MIME-Version: 1.0
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Jack and Raquel wrote:
>
> We will be going to the falls mid October, so let us know if you
would
> like to have a get together..
>
> Raquel Miller....
HI....let us know the exact dates...closer to then ...and we will try
our
best. Weather at that time should be still nice...!
=========================================================================
Date: Mon, 29 Mar 1999
23:41:26 EST
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From: Lisa Guyette
<LAM1126@AOL.COM>
Subject: Thanks to what to tell other
Children
Mime-Version: 1.0
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Thanks so much for your answers on what to tell other children.
I too am a
little selfess that I secretly hope they already know so I don't have
to deal
with the whole watching them stare and then asking.
Yesterday a woman couldn't wait to see my baby. She "Ohhh a cute
baby,"
before she even saw Samantha. Then she got quiet.
She matter of factly said
"Is she sick?" She tried to say down syndrome, but it didn't come to
her right
off so she said Mongloid. I said yes but it's another birth defect
called
Aperts. Well this woman was really wonderful and talked to me
for a long
time. I still went home sad over the experience. But I
realized that I liked
her approach and if more people were this upfront and honest throughout
our
day then when it does happen I wouldn't be thrown for a loop.
Now I don't know if I was suppose to learn something in my experience
today
but I was standing next to a woman about eight months pregnant, both
of us
looking at diapers. I asked being a new mom and all "When are
you due," she
said, I'm not it's a liver problem. I said I'm sorry and how
she handled it
was: "I have three kids already so I'm grateful for it being a liver
and not a
pregnancy."
Love, Lisa
=========================================================================
Date: Tue, 30 Mar 1999
12:38:59 EST
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From: Firefli007@AOL.COM
Subject: Re: What to say to other Children?
Mime-Version: 1.0
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Hello everybody..
Yes, it has been a LOOONGG time since i have written., But life has
been a
little crazy
I am jenny Brown, 32 yrs young , single, Trumpet player, Site manager
of my
senior citizen's place. Grad school school student...ALMOST DONE!!!
with
Apert's from Savannah Ga. It is BEAUTIFUL down hereflowers blooning
all over
creation. (Joanne, come down south where it is warm....no snow!!!
grin haha)
OK... here's my two cents worth.
For people who stare or ask questioons.. MY answer to them is
"Questions never hurt.. ignorance does." Kids are the greatest.
I am always
very honest and they really appreciate that. Also it helps to
puit it to a
level that they can relate to : Like "You know how God gave you
blonde hair
and me brown.. that's different right? Well the same is for the
way I look
and the way you look. It would be a boring world if everyone
looked the
same."
Another good point somebody saiud was to be the role model. If
I act like
it's OK to ask questions, and am AOK with who I am, others will follow
my
lead.
One funny story happened when I was 12..visiting my cousin in North
carolina.and her family for the first time.. They had four year old
Kelly who
had been told of me and my diiferences. A week into the vacation,
Kelly
looked at me and said "Jenny when is that girl coming who has the different
hands?" we all CRACKED up...
It's all in perception.
I am planning on joining y'all for the Myrtle Beach excursion... am
coming
probably on the Saturday and staying til Tuesday or so.. Can't wait
to finally
meet "all y'all"
Sunday dinner is cool with me...
Am at work now,. just wanted to drop a line and say I am still
with youi in
my heart and prayers
Will firm up plans for June and stay more active with this GREAT FAMILY
Welcome to all I haven't met yet,
LOVE YA
Jenny in Georgia
=========================================================================
Date: Tue, 30 Mar 1999
11:47:33 -0600
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From: Bart & Karla
Kenton <kenton@MAILHOST.DAILYNEWS.NET>
Subject: Re: hands
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
My son Riley has type 3 hands. He has had one surgery to release
his thumbs
and separate between his middle and ring finger. Our physician
does both
hands and both feet in the same surgery. He will have one more
surgery next
month to completely separate his hands and feet. We've been very
pleased so
far. Our physician told us that Riley's hands were the most advanced
he's
done.The x-rays were amazing. His bones in his fingers looked
looked
nothing like fingers they were totally disarranged. Our physician also
stated he wouldn't be able to promise all five digits, but he thought
he
could get them. He told that he's only had one child that he
couldn't get
all five and that was because the bone was too thin. We see Dr. Fearon
in
Dallas and have been very pleased with his work. If you want more
information let me know.
Karla
Hays, Ks
-----Original Message-----
From: Cristy Williams <CARLEE0604@AOL.COM>
To: APERT@LISTSERV.AOL.COM <APERT@LISTSERV.AOL.COM>
Date: Saturday, March 27, 1999 8:36 PM
Subject: hands
>Hello Everyone,
>
>I was wondering if there are any children with type 3 hands. The worse
type
of
>hands with aperts. (that's what our Dr. said) that have 5 functional
fingers
>on each hand? Carlee's hand surgeon told us when he released her pinky's
in
>January that he could only make 3 fingers and a thumb functional.
I have
been
>thinking of a second opinion ever since. But the other day I made
up my
mind
>that I am going to do it. If they tell me they can only do as good
as her
Dr.
>said then I will know that atleast I tried. I just keep thinking
there
might
>be a Dr. that may could get all 5, and functional. Well if any of
you have
>children with that type of hands could give me info. I sure would
appreciate
>it.
>
>Thanks,
>
>Cristy
>in Orange Park, Florida
=========================================================================
Date: Tue, 30 Mar 1999
14:58:42 -0600
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From: Judy Amerman
<jamerman@UTI.COM>
Subject: Hey Jenny!
MIME-Version: 1.0
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_0019_01BE7ABD.CDBD5EA0"
This is a multi-part message in MIME format.
------=_NextPart_000_0019_01BE7ABD.CDBD5EA0
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
So glad you are coming. We can't wait to meet you
Judy
jamerman@uti.com
------=_NextPart_000_0019_01BE7ABD.CDBD5EA0
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD>
<META content=3D"text/html; charset=3Diso-8859-1" =
http-equiv=3DContent-Type>
<META content=3D"MSHTML 5.00.2014.210" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY bgColor=3D#ffffff>
<DIV><FONT face=3DArial size=3D2>So glad you are coming.
We can't =
wait to meet=20
you</FONT></DIV>
<DIV> </DIV>
<DIV><FONT face=3DArial size=3D2>Judy</FONT></DIV>
<DIV><FONT face=3DArial size=3D2><A=20
href=3D"mailto:jamerman@uti.com">jamerman@uti.com</A></FONT></DIV></BODY>=
</HTML>
------=_NextPart_000_0019_01BE7ABD.CDBD5EA0--
=========================================================================
Date: Tue, 30 Mar 1999
17:02:05 EST
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From: Mary Bresnahan
<Munch35738@AOL.COM>
Subject: Re: John Upton, M.D. query
Mime-Version: 1.0
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Lynn, I was curious because he sounded familar to me. I have a
cleft palate
and had multiple surgeries in Boston Mass. I am originally out
of New
Hampshire and I moved to Florida. I love my new home and
been here for
almost 9 years. Mary
=========================================================================
Date: Tue, 30 Mar 1999
17:30:54 EST
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From: BBarn60368@AOL.COM
Subject: Re: Thanks to what to tell other
Children
Mime-Version: 1.0
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Lisa:
One day, right after Shirley was born, I was out strolling her.
I ran into a
lady and she bent over to look at my newborn. Before she noticed,
I took
Shirley's little "rosebud hand" and said,"She came with a few problems".
The
lady looked back at me and said, "Honey, they all come with problems!"
Then
she went on to "oogle" at my Shirley. I will never forget the
wisdom in her
words.
Much love to all,
Alice in Orlando
=========================================================================
Date: Tue, 30 Mar 1999
17:57:07 -0600
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From: "Niemi, Liz"
<Liz.Niemi@NMB.NORWEST.COM>
Subject: Hello! We are here!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Hi Everyone!
My name is Liz Niemi, and my son Jake was born 11/11/97 with Apert Syndrome.
We have just been added to the Apert Listserv and couldn't be happier!
Jake is almost 17 months old and is doing very well! Our family
and Jake's
story was recently told on a PBS show called Health Diary. I
hope some of
you were able to see it. We are very proud of the show, and the
way they
told our wonderful story of Jake. This last Sunday was an update
to the
show, and I've recently been told that they will be re-airing the series
sometime this summer. We still struggle daily with Jake's trach,
but are
hopeful he may have it removed sometime soon. Health Diary will
be
following Jake's story through the end of this year.
Anyway....we just wanted to say hello, and that we're proud of Jake
and of
this Website. Thanks, Don for adding us!
Sincerely,
The Niemi Family :-)
=========================================================================
Date: Tue, 30 Mar 1999
21:34:34 EST
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From: Gail Montes <Gailsvm@AOL.COM>
Subject: Re: Hello! We are here!!
Mime-Version: 1.0
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To the Niemi Family,
Welcome! I saw part of Jake's story on PBS. A friend of
mine in New
Hampshire called me (in Massachusetts) to tell me that it was on, and
that it
sounded like a lot of what we have been through with our daughter,
Rachel.
Rachel does not have Apert's, but does have some sort of craniofacial
syndrome
that her physicians have not been able to define yet. Jake's
story was very
interesting, what small portion I did see. I believe I saw Dad
being
interviewed, saying you are only given what you can handle. It
could have
been our family there, because our feelings mirrored your own!
Hopefully,
I'll be able to see the whole episode when it is re-aired!
Take care. Gail Montes and family
=========================================================================
Date: Tue, 30 Mar 1999
22:48:23 -0600
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From: "Niemi, Liz"
<Liz.Niemi@NMB.NORWEST.COM>
Subject: Re: Hello! We are here!!
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Thank you Gail!
I'm trying to get copies of the show, and if I do, I could send them
to you
to view if you'd like. Just let me know. Have you contacted
NORD (National
Organizations for Rare Disorders) regarding Rachel's craniofacial syndrome?
Just curious if maybe they've seen it before. We are on their
mailing list,
and get regular newsletters from them.
Liz
-----Original Message-----
From: Gail Montes
[SMTP:Gailsvm@AOL.COM]
Sent: Tuesday,
March 30, 1999 8:35 PM
To:
APERT@LISTSERV.AOL.COM
Subject:
Re: Hello! We are here!!
To the Niemi Family,
Welcome! I saw part
of Jake's story on PBS. A friend of mine in
New
Hampshire called me (in
Massachusetts) to tell me that it was on,
and that it
sounded like a lot of what
we have been through with our daughter,
Rachel.
Rachel does not have Apert's,
but does have some sort of
craniofacial syndrome
that her physicians have
not been able to define yet. Jake's story
was very
interesting, what small
portion I did see. I believe I saw Dad
being
interviewed, saying you
are only given what you can handle. It
could have
been our family there, because
our feelings mirrored your own!
Hopefully,
I'll be able to see the
whole episode when it is re-aired!
Take care. Gail Montes
and family
=========================================================================
Date: Wed, 31 Mar 1999
01:18:02 EST
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Sender: Information exchange and
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From: Lisa Guyette
<LAM1126@AOL.COM>
Subject: Re: Thanks to what to tell other
Children
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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Shirley,
What a great story. I just love people with that kind of matter
of fact
wisdom.
Thanks for sharing that story.
Love, Lisa Guyette
=========================================================================
Date: Wed, 31 Mar 1999
00:58:34 -0600
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From: "MARK E. DUBAS"
<Murphy@PLATTEVALLEY.NET>
Subject: Re: Hello! We are here!!
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Content-Transfer-Encoding: quoted-printable
Hello..
Just want to say welcome to the Niemi family, I'm
Mark, a 35 year =
old with Aperts, have been on the listserve since January, and have
=
loved every minute of it. Please feel free to email me at anytime with
=
any questions you may have...
Mark=20
----------
From: Niemi, Liz
Sent: Tuesday, March 30, 1999 5:57 PM
To: APERT@LISTSERV.AOL.COM
Subject: Hello! We
are here!!
Hi Everyone!
My name is Liz Niemi, and my son Jake was born 11/11/97 with Apert =
Syndrome.
We have just been added to the Apert Listserv and couldn't be happier!
Jake is almost 17 months old and is doing very well! Our family
and =
Jake's
story was recently told on a PBS show called Health Diary. I
hope some =
of
you were able to see it. We are very proud of the show, and the
way =
they
told our wonderful story of Jake. This last Sunday was an update
to the
show, and I've recently been told that they will be re-airing the series
sometime this summer. We still struggle daily with Jake's trach,
but =
are
hopeful he may have it removed sometime soon. Health Diary will
be
following Jake's story through the end of this year.
Anyway....we just wanted to say hello, and that we're proud of Jake
and =
of
this Website. Thanks, Don for adding us!
Sincerely,
The Niemi Family :-)
=========================================================================
Date: Wed, 31 Mar 1999
08:49:59 EST
Reply-To: Information exchange and Internet
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From: Cristy Williams
<CARLEE0604@AOL.COM>
Subject: Re: Hello! We are here!!
Mime-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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Hello to the Niemi Family,
We are Cristy, Clyde and Carlee 10 mos baby girl with Aperts. We saw
your
show. We had heard about it, and it didn't air here in Florida, so
we ordered
the tape. I have to say it did make me cry. Just seeing another family's
story
is enough to make you cry. Jake is so cute. Carlee has curls too. Her
first
cranial surgery is on April 12th. SOON! I am glad you guys did
this program
and we got to see it. I don't want no suprises and want to know everything
I
can about Carlee's surgery. You guys are a very strong family. I don't
know if
you got the address off of here to send your name and address, because
the
listserv is doing a picture exchange. We are still in the process
of getting
a picture of all 3 of us. I think there was 44 people on the list.Well
I am
glad you guys are on the listserv. Take care.
Love,
Cristy, Clyde, and Carlee
=========================================================================
Date: Wed, 31 Mar 1999
16:29:42 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: Myrtle Beach
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We had surgery on 3/1 and are still in the rewrap phase. Jonathan
is only 2
but knows the drill so well he climbs up on the vanity in the bathroom
and
holds his hand out to do his bandages just like some kids would go
to brush
their teeth. It continues to amaze me how tolerant and adaptable
our kids
are. We now have 10 lovely fingers and they are all functional.
We did go
for a second opinion before we started our hand surgeries because the
first
surgeon was very negative and wouldn't give us any encouragement at
all in
terms of getting all 10. We went to another surgeon after seeing
his work
(How are you Miss Kimberly?) and he didn't hesitate to say there would
be no
problem with getting all 10. Of course, he wouldn't know the
vascular
situation until he went in. We were very fortunate in that he
was able to
provide Jonathan with 10 wonderful working fingers.
I know we have discussed this in the past but we are now facing the
difficult
decision as to should we do the toes. We are leaning towards
not since
Jonathan has no orthopeodic concerns and it would be strictly cosmetic.
I
just can't imagine doing all the skin grafts again. We thought
maybe we would
wait and let Jonathan make the decision when he is older. Although
it would
be so much easier on him to do it while he is little and doesn't remember
the
surgery and wouldn't miss school, etc.
I'd love to hear back from some of our adults with Aperts and if they
didn't
have it done do they wish they had as a small child, etc.?
We would love to go to the Apert conference. But the airline my
husband works
for doesn't fly to that area and it's too far for us to drive and still
have
sufficient time for R and R. I'm still trying to figure out a
way to go.
Lisa, we have had some difficult situations with children staring
and asking
rude questions too. We try very hard to answer in a positive
manner.
Although I do find myself staring back at the rude adults who should
know
better. My answer to kids is that God made Jonathan look a little
different
but that he is a very special child and is the same as them on the
inside.
That usually takes care of the kids. I still feel like my heart
was stabbed
when people make cruel comments about my precious baby and really have
to
fight back the tears but I'm getting stronger with each incident.
Fortunately, we don't have too many negative situations. I find
that most
people smile and act as if Jonathan is just like any other child.
I've even
had comments like "he is so cute". That really makes my day.
Welcome to all the new families. We wish everyone well.
Brenda
Houston
=========================================================================
Date: Wed, 31 Mar 1999
16:29:43 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: Just wondering.
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I did the same thing while we were separated in two different hospitals.
After I was released I couldn't find a good electric pump to rent and
eventually I just stopped producing enough to feed him. But it
did make me
feel wonderful to know that I was still providing what only his MOM
could when
he was in neonatal and I was still in the hospital elsewhere.
Brenda
=========================================================================
Date: Wed, 31 Mar 1999
16:34:42 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: GSieb91515@AOL.COM
Subject: Re: Hello! We are here!!
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Welcome Neimi family from the Sieberts in Houston, TX. Our Jonathan
is 2
years old and has had 7 surgeries to date. We now have 10 functional
fingers
and are doing well other than being speech delayed. Thanks for
joining our
growing family. We look forward to chatting with you.
Brenda, George, Melissa and Jonathan Siebert
Houston, TX
=========================================================================
Date: Thu, 1 Apr 1999
08:29:04 -0500
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: tony zieth <zieth@HOTNET.COM.AU>
Subject: Easter wish for you all
Comments: To: CDLS LIST LETTERS <cdls-kids@home.ease.lsoft.com>,
fostercare list
letters <fphp@egroups.com>,
Howard &
Ann <howrdnan@ihug.co.nz>, mary mich <michmary@yahoo.com>,
Natalie and
Adrian winskill <winskills@esc.net.au>,
Scott &
Vikki <scotvikk@ozemail.com.au>
Comments: cc: sue and david ferrito <ferrito@powerup.com.au>, pdheart@magma.ca
MIME-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
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This is a easter wish for all our friends is computer land.
HAPPY EASTER TO ALL OF YOU,
+++++++++++++++++++++++++++++++++++++++
HOPE ALL YOUR EASTERWISHES COME TURE.
++++++++++++++++++++++
AND DON'T FORGET WHY WE HAVE EASTER!!!!!! (no not for the easter bunny!!)
+++++++
PLEASE STAY SAFE AND HEALTHY.
+++++++++++++++++++++++++++++++++++++++
BEST WISHES FROM THE ZIETH FAMILY, QUEENSLAND AUSTRALIA.
++++++++++++++
ps, we are away for easter, so don't get up to too much or I will come
back
to 1000's of letters heheheheheh..............() () () ()
=========================================================================
Date: Wed, 31 Mar 1999
20:15:27 +0000
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: "J. G. Lindamood"
<chanan8@JUNO.COM>
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Hello! Happy Spring..Happy Easter!
To Jenny in Georgia, when can I come? Just kidding... I will be
"stopping by" sometime soon on my way to Florida, but Atlanta Airport
will be enough of a sight for me!
I want to ditto Jenny's philosophy, I practice it already, but didn't
think to mention it...God made you with blue eyes, me with brown.
It
really works!
Just to share...I went into a new patient's room to evaluate her for
activity interests, a daily routine for me. The lady and I talked
freely
for 30 minutes or more. The average eval. takes 10 minutes!
When I was
finished, she asked if she could do the questioning. I agreed
and she
let loose. The woman even sat up to get a better look!
I realized
something I had been doing all of my life. When people ask me
"what
happened", my pat answer was always "I was born this way". That's
not
true. I didn't have thumbs nor was my skull properly developed.
I need
to rethink my response.
You can not imagine the sense of relief I felt when I left her room.
It's like everything is out on the table. There's nothing to
explain.
gorgeous weather here for four straight days!!! We are on a roll!
Joanne
=========================================================================
Date: Wed, 31 Mar 1999
21:14:02 EST
Reply-To: Information exchange and Internet
safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
Sender: Information exchange and
Internet safe haven for Apert Syndrome
and other craniofacial anomalies <APERT@LISTSERV.AOL.COM>
From: Marilyn Williams
<Mbwill43@AOL.COM>
Subject: Re: Hello! We are here!!
Mime-Version: 1.0
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HI JAKE AND FAMILY, I SEEN THE TAPE OF JAKE'S SURGERY AND SOME OF WHAT
YOU GO
THROUGH DAILY, YOU SURE ARE GREAT PARENTS AND ONE DAY JAKE WILL KNOW
HOW
SPECIAL YOU ARE. I'M CARLEE'S GRANDMOTHER YOU SEE ME ON THE LIST FROM
TIME TO
TIME. WELCOME TO OF FAMILY.MARILYN