16th Annual Myrtle Beach Apert International family retreat
The Crown Reef is the place to be in July 2014!
Re: Families of Children and Adults With Apert Syndrome
Dates: July 11th through July 18th 2014
Apert Syndrome is a congenital birth defect that affects only 1 in 160,000 individuals. It is so rare that it is often difficult to meet other affected families. Apert Syndrome involves fusion of the fingers and toes, premature cranial fusion, midface retrusion, various degrees of brain anomalies and other internal/external abnormalities. Children often undergo twenty or more surgeries in their first few years to correct these problems.
This retreat will help families of children and adults with Apert Syndrome to meet one another and to discuss recent breakthroughs in surgeries, share experiences and to gain general knowledge of this rare syndrome. The focus of the retreat will be directed towards dealing with everyday life problems and situations - a perspective that is overlooked by the medical profession. To our knowledge, our group is the largest in the world of individuals with Apert Syndrome and their families. This retreat is very important to all of us, since Apert is so rare. It is a wonderful opportunity to share and learn from experiences of others, as well as feel a sense of belonging with someone else whom has "walked in our shoes". We can also teach and give hope to those who have just joined our wonderful Apert family.
Our organization, www.apert.org, is the largest online support network for Apert Syndrome in the world.
There is no registration fee; however, attendees will be responsible for their own travel costs, accommodations and meals. Please make your reservations directly through the hotel. Please let me know if you make a reservation!!
Reservations for the Crown Reef: (843) 626-8077 or toll free (877) 435-9125
Use the group code APERT2014 . This group code will assure us of getting in the same block pricing of rooms. You will need a credit card to pay for your first nights stay as a deposit. If you need to send a check, ask on their policy.
Rates are based on double occupancy. Only one parking pass will be issued per room. Check in time is 4pm, check out time is 11am. Occupancy tax and Resort Fees apply on above rates. Please let me know if you make reservations!!
The Tropical Seas South, which is next door to the Crown Reef - (800) 438-5015
The Mystic Seas - (800) 443-7050 Located at 2105 S. Ocean Blvd. (8 blocks from CR)
Red Roof Inn on Highway 17 and 29th Ave. South. This hotel is one block off the ocean and within sight of the Crown Reef. The phone number to that hotel is (843) 626-4444.
I would also highly recommend renting a car, if you are flying in for the week. There is so much to do in the area and you might want to see the sights. Taxis are also available in the area.
The efficiency hotel rooms are nice if you are planning on staying for a few days or all week, since they have kitchens. There are grocery stores and two Super Wal-Mart stores nearby.
Friday, July 11th - Welcome get together, very casual, meet all the families - at the hotel down by the pool or on the beach after you check in. Let's try to get together in the evening, before sunset to get group shots on the beach.
Saturday, July 12th - Open so please feel free to look around and enjoy the area.
Sunday, July 13th - Pizza party!! We will have the pizza party across the street at the Conference Center. The Crown Reef has given us this space at no charge!!! Thank you Crown Reef! And this pizza party has been fully funded for our families!!
Monday, July 14th - Dinner at 7:00pm at Benjamin's Calabash in North Myrtle Beach. The
cost will be $25 per adult; $12 for kids 6-12; $6 for ages 3-5 and free
for under 3. The meal includes all you can eat 170 item seafood buffet
with crab legs, Chinese bar, pasta bar, American foods bar, Mexican bar,
bread bar, salad bar, dessert bar, drinks (non-alcoholic), and tax and
tip!! Normally, it's about $30 per person plus tax, tip and drink. The
room we have reserved has windows that overlook the intracoastal waterway.
After dinner, there is a play room area connected to the dining room that
the children can go into if they wish. Park out back by the intracoastal
waterway and use the back door, downstairs entrance.
Anytime during the week -
Ripley's Aquarium at Broadway at the Beach. The price is $10.00 per person!!!!! Thank you again Ripley's Aquarium for this WONDERFUL discounted rate!!!!!!! If you want to visit any of the other Ripley's Attractions - Believe It Or Not (1 and under free), Haunted Adventure (6 years and older), 5D Moving Theater (43 inches tall) and/or Mirror Maze (1 and under free), we have a group discount of $6.50 per person, per attraction. I will have flyers that you can take to Guest Services at the attractions.
Other places of interest :
Hard Rock Café at Broadway at the Beach
Need more info: Write to me at IrmoCat2@aol.com Hope to see you all there!!!
:) Cathie Sears :)
If you make a reservation and you are coming, PLEASE contact me so I can put you on our list for the head count for the pizza party on Sunday night and for the Monday dinner at Benjamin's Calabash!! I also need to know to make sure you get in our block of rooms and floors at the Crown Reef.