17th Annual Myrtle Beach Apert International family retreat
The Crown Reef is the place to be in June 2015!
Re: Families of Children and Adults With Apert Syndrome
Dates: June 12th through June 19th 2015
Apert Syndrome is a congenital birth defect that affects only 1 in 160,000 individuals. It is so rare that it is often difficult to meet other affected families. Apert Syndrome involves fusion of the fingers and toes, premature cranial fusion, midface retrusion, various degrees of brain anomalies and other internal/external abnormalities. Children often undergo twenty or more surgeries in their first few years to correct these problems.
This retreat will help families of children and adults with Apert Syndrome to meet one another and to discuss recent breakthroughs in surgeries, share experiences and to gain general knowledge of this rare syndrome. The focus of the retreat will be directed towards dealing with everyday life problems and situations - a perspective that is overlooked by the medical profession. To our knowledge, our group is the largest in the world of individuals with Apert Syndrome and their families. This retreat is very important to all of us, since Apert is so rare. It is a wonderful opportunity to share and learn from experiences of others, as well as feel a sense of belonging with someone else whom has "walked in our shoes". We can also teach and give hope to those who have just joined our wonderful Apert family.
Our organization, www.apert.org, is the largest online support network for Apert Syndrome in the world.
There is no registration fee; however, attendees will be responsible for their own travel costs, accommodations and meals. Please make your reservations directly through the hotel. Please let me know if you make a reservation!!
Reservations for the Crown Reef: (843) 626-8077
Cut off date for these rates will be April 11, 2015. After the cut off date, they can no longer offer these rates and/or guarantee availability.
Use the group code Apert Group 2015, Reference #175145 . This group code will assure us of getting in the same block pricing of rooms. You will need a credit card to pay for your first night as a deposit, plus applicable taxes and resort fees. If you need to send a check, ask for their policy.
Occupancy tax of 12% and Resort Fees of approximately $10 per night apply and will be added on above rates. Rates are based on double occupancy. Only one parking pass will be issued per room. Check in time is 4pm, check out time is 11am. Please let me know if you make reservations!!
The Tropical Seas South, which is next door to the Crown Reef - (877) 580-5713
The Mystic Seas - (800) 443-7050 Located at 2105 S. Ocean Blvd. (8 blocks from CR)
Red Roof Inn on Highway 17 and 29th Ave. South. This hotel is two blocks off the ocean and within sight of the Crown Reef. The phone number to that hotel is (843) 626-4444.
I would also highly recommend renting a car, if you are flying in for the week. There is so much to do in the area and you might want to see the sights. Taxis are also available in the area.
The efficiency rooms are nice if you are planning on staying for a few days or all week, since they have kitchens. There are grocery stores and two Super Wal-Mart stores nearby.
Friday, June 12th - Welcome get together, very casual, meet all the families - at the hotel down by the pool or on the beach after you check in. Let's try to get together in the evening, before sunset to get group shots on the beach if the weather permits.
Saturday, June 13th - Open so please feel free to look around and enjoy the area.
Sunday, June 14th - Pizza party!! We will have the pizza party across the street at the Conference Center. The Crown Reef has given us this space at no charge!!! Thank you Crown Reef! And this pizza party has been fully funded for our families!!
Monday, June 15th - Dinner at 7:00pm at Benjamin's Calabash in North Myrtle Beach. The
cost will be $25 per adult; $12 for kids 6-12; $6 for ages 3-5 and free
for under 3. The meal includes all you can eat 170 item seafood buffet
with crab legs, Chinese bar, pasta bar, American foods bar, Mexican bar,
bread bar, salad bar, dessert bar, drinks (non-alcoholic), and tax and
tip!! Normally, it's about $40 per person plus tax, tip and drink.
Benjamin's has not gone up in price for our group for 17 years. We are
the only group that they have done this for. They are an amazing,
family owned business :) Our location within the restaurant for our
reservation will depend on the number of people attending. I will give
further info on that, as we get closer to the date.
Anytime during the week - PENDING!!!!
Ripley's Aquarium at Broadway at the Beach. The price is $10.00 per person!!!!! Thank you again Ripley's Aquarium for this WONDERFUL discounted rate!!!!!!! If you want to visit any of the other Ripley's Attractions - Believe It Or Not (1 and under free), Haunted Adventure (6 years and older), 5D Moving Theater (43 inches tall) and/or Mirror Maze (1 and under free), we have a group discount of $6.50 per person, per attraction. I will have flyers that you can take to Guest Services at the attractions.
Other places of interest :
Hard Rock Café at Broadway at the Beach
Need more info: Write to me at firstname.lastname@example.org Hope to see you all there!!!
:) Cathie Sears :)
If you make a reservation and you are coming, PLEASE contact me so I can put you on our list for the head count for the pizza party on Sunday night and for the Monday dinner at Benjamin's Calabash!! I also need to know to make sure you get in our block of rooms and floors at the Crown Reef.