Links to Craniofacial Sites

Links, links, links

Apert Sites from other countries

Sweden
Finland
Germany (Deutschland)
Apert Site Argentina
Apert Site Chile
Howard Esler and Ann Luxton's New Zealand Apert Network
Apert.Org New Zealand
Apert Syndrome Information in Swedish
Apert en Mexico
Letícia Stauffer Oliveira de Figueiredo

Independent Apert / Craniofacial Sites of Individuals

Andrew's Apert Journey
Moisés Page in Brazil
The Complete RED Survival Guide
Personal Side of Craniofacial Differences
Leigha's Craniosynostisos Web Site
Katie's Clothes Bin - an independent business run by Katie, who has Apert.

Helpful Online Publications

A Guide to Understanding Apert Syndrome from CCA
Genetics Home Reference
Listen to Our Stories - Words, Pictures, and Songs by Young People with Disabilities

Research Articles

Craniofacial Organizations

Operation Smile
Operation Smile Philippines
National Special Needs Network
Cleft Palate Foundation
FACES: The National Craniofacial Association
Childrens Craniofacial Association - CCAKids.org
Cleft Advocate
World Craniofacial Foundation
Let's Face It USA
WideSmiles: An organization devoted to cleft lip/palate, much of the discussion centers around craniofacial issues, too.
Crouzon Support Network
Headlines, Craniofacial Support - a great group in the UK
The United Kingdom Treacher Collins Syndrome Page
Craniofacial Foundation of Arizona
Craniofacial Foundation of America

Regional Medical Centers

South Carolina Center for Cleft Palate and Craniofacial Disorders - This is Teeter's fantastic craniofacial team
The Center for Craniofacial Development and Disorders at Johns Hopkins University
The Craniofacial Page of the Pediatric Neurosurgery Page (Columbia Presbyterian Medical College)
Barrow Craniofacial Center, Phoenix, AZ

Online Medical References

Explanation of the RED system
The OnLine Journal of Plastic and Reconstructive Surgery:
The Official Journal of The Institute for Craniofacial Plastic Surgery, Campinas, Brazil
Mountain States Genetic Network

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all photos and text are the property of the families represented, and may not be used without their consent.