| On November 22, 1989, my beautiful little angel was born. My husband
had been waiting so anxiously for our new arrival. I was in labor for
least 20 hours and I remember the nurses telling me that I needed to
harder. I had tried to explain to them that I was pushing as hard as I
possibly could. Two hours later, I recalled a nurse coming in to check
I had dilated to 10 and she couldn't figure out why nothing was
half and hour later she came in and discovered that Dannyellee was in
distress. I remember the doctor rushing me to the operating room to
emergency C-section. My husband looked like a lost little boy as they
me away from him. In the operating room, I remember them finally
to sleep. When I woke up in the recovery room, I asked a nurse what did
have and is it ok? She wouldn't tell me anything. Moments later my
and my mother came to me and explained that we had a baby girl,
fingers and toes were together and that Riley Hospital for Children
their way to pick her up. The doctors weren't sure if she was going to
She was born deprived of oxygen. It was about an hour later and I was
up to my room. The doctors' were finally able to stabilize her long
for me to see her. Upon returning to my room, there were at least 75
in there. When the team came in from Riley they ensured us that she
ok to be transferred to make the trip and if they didn't get back to
hospital as soon as possible it could be worse for her.
It was two weeks before I got to see her. She was 7lbs. 13 in. long.
was the biggest baby in the neonatal unit. My first visit with her was
for about 2 hours. I was only allowed to go down there with the
permission. It was the hardest thing to leave my baby.
I called every night, sometimes more than once. My husband and I was
all the time during the day and evenings. One doctor came in and told
she had a rare syndrome called "Apert", and she also had
Cerebral palsy and
seizures. They told us we would probably never go home with her.
Three days later she was well enough to come home and be with her
It was December 2, 1989 that we got to bring her home. This was the
birthday present I had ever received. (My 21st birthday was on the 10th
December, most people would have been out celebrating by drinking, I
thrilled to bring home my angel). The three of us stayed with my
three months after we came home. I was too afraid to take her home by
My parents and sisters were the best support (they still are).
Dannyellee has had at least 35 surgeries in her 11 years. These
were so hard to see when she was a baby....they were also hard to
she got older. She has taught me so much about love.
In July 1996, her father died of a heart attack. I thought I'd never
it without him. She is a man person. She loved her dad so much. In
1997, she was in and out of the hospital with bowel obstructions. She
real close to dying and then came back to me. All I could think of is
too. During this time another special man in her life was struggling
cancer. Her pappaw.....they were very close to one another. He
"Missy". She knows her nickname too. He had asked me not to
let no one use
Dannyellee as a guinea pig. I promised him I wouldn't. Easter Sunday,
1998, her pappaw passed away...I was so mad. How could the other person
loved so dear pass away. This information plays an important role of
information that will be given later in this letter.
During all this Dannyellee and I still carried on. I had been single
since 1996. I wanted so much to have a man in our lives. I knew that it
be impossible because I knew it was very rare to find someone who would
accept both of us. I prayed so hard for the longest time. In October
met this gentleman by the name of Donnie Sparks. I told him that I
sure if I wanted a relationship. I told him of Dannyellee. Well I was
shocked next....he came over every weekend. Dannyellee fell in love
he also fell in love with her. He also has custody of his daughter who
She also fell in love with Dannyellee. Dannyellee also fell in love
Samantha. In May 1999, my daughter and I married our new family.
Dannyellee had to have hip surgery November 18, 1999. I had a hard time
with this because both of my parents had always been there with me when
had to have surgery. I had asked my dad to take care of her during
The surgery went just fine. Later that evening, she was being fed
g-tube and had been given high doses of morphine. My husband and I had
came back from being down stairs to get a diet coke. When we went into
room Dannyellee sounded like she was snoring. That was something she
did. We started to suction her and when I did, she started seizing. The
nurses came in. My little angel had stopped breathing. Her heart was
Her lung had collapsed from her aspirating. She was ventilated for
days. She came of the ventilator to end up back in ICU two weeks later
chest tubes in each side. Her and I came home three weeks later. This
very stressful on my new family. I knew for sure that my husband would
for a divorce. I was wrong again.
Since last November, we have been in and out of the hospitals with
repeated pneumonia. We were able to go to Disney World in September
had a great time. My husband put her on the Goofy roller coaster. They
wading in the pool. To the beach and seen Shamoo. She did lots of
this grown up kid. This all happened thanks to Make a Wish
My angel once again was struck down with pneumonia during the last week
of October. On November 2, 00, her doctor came into our room and told
needed to call in the family that she would probably pass on this day
next. Dannyellee is immune to oral antibiotics. On this day, she quit
breathing on three or four different occasions (then she would take a
out of no where). The nurses on the evening shift said it wouldn't be
longer because her pupils were beginning to be fixed. This was so awful
have to go through. Like when she was born, there were a room full of
(175). We were preparing for her to pass. The pastor from our church
teach that evenings service. He told the assistant pastor to take over,
needed to go back to the hospital. During the night it was very touchy.
The next morning, I had them to drop her oxygen down to 50%. I have DNR
papers on her. I thought well maybe I need to do the next step to let
I have talked to her quite a bit and told her it was ok to go live with
Jesus, pappaw and daddy. Out of nowhere, she opened her eyes and
playing. She even said "num...num". I just cried. I found out
later that day,
that Thursday evening service consisted of intercessory prayer and the
church was in one accord prayer for Dannyellee to turn around and come
Since this happened, I ask her if she seen pappaw....she just squeals
the top of her lungs and laughs and plays. I know that in my heart she
part of heaven, the angels and her pappaw.
I have now chosen to keep her home. The doctors are shocked, they still
have told us that there is nothing more they can do for her. It is in
hands. We know that first hand.
Thanksgiving day, she had squirmed her way under her pillow. My mom
her faint cry. When she walked in the room, Dannyellee's face was black
blue. Mom calmly yelled for me. I thought I was going to die. I
put her oxygen on her. She quickly came back to her normal color. She
fine after that. I know in my heart that is my mom wouldn't have heard
she would have passed away.
Please don't read this and think all I have wrote about us is negative.
Today, I can say by the grace of God and the strong spirit of
she has a very important role on this earth. She is the sunshine in a
peoples lives. I am so thankful for her. Not only is she my daughter,
my best friend. I plan on keeping her until God calls her home. This
angel of mine has suffered a lot during her life, but she has more
and love in her heart than anyone could ever know.
I ask when you read this don't feel sorry for us. Just think... wow...
a little trooper. She is a very strong willed person. Even though, she
be able to walk, talk like we do or even look like we do... she is so
precious in a lot of peoples hearts.
We want to encourage everyone. I know our road is still very rocky and
may wake up at anytime and find her not alive... but what everyone
remember all these children will always live in our hearts. Dannyellee
taught me more about life than I could ever think about teaching her. I
God that he chose me to take care of such a special human being.
Though, I don't know how long she will live... she will always be in
I have learned to cherish every day that I have with her. Not a day
that she doesn't smile and laugh with me.
May God Bless